What does it feel like? Information for Parents

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We have recently received a lot of messages from parents with children diagnosed with ITP, some as young as 2 years old.  Parents are looking for as much information as they can find.  These are messages of kindness and confusion as they try to better understand what their children are going through.  The most common question is this…

 – What does it Feel Like to have ITP? – 

So what does it feel like to have ITP?  If you were trying to explain what it felt like to have ITP what would you write?

Screen shot 2013-11-10 at 4.32.19 PMHow do you feel on the Bad Days?  How do you feel when your platelets are falling?  How does it feel after you have exercised or exhausted yourself?  How do you feel when you don’t get enough sleep?  When you bang your wrist on the door?  How do you feel when you can’t cool down?

We would like to collect as much information as possible about how it feels to have ITP on behalf of all the children who can’t describe what they are going through to their parents.

If you are willing to contribute your own feelings on having ITP – What it feels like to YOU – We would love to hear from you.  Everything you share will remain anonymous (apart from your gender) and will be made available shortly in an article posted on this site.

Contact us through our email itp.and.me.g@gmail.com or message us on Facebook.  

Thank You

by Meg

Meghan Brewster is a writer and blogger. She is an ITP patient and launched ITP&Me in 2011. She is a coffee lover and a try hard dancer. @meghan_brewster

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