The Best Blogs for ITP

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Feature image from ITPANDME

When searching on the Internet for information about ITP, you can end up looking through a lot of websites for Income Tax Professionals.

We decided to make it easier to find great ITP blogs by putting them all together in one place.  There is a lot to read about ITP if you know where to look and more personal blogs and websites popping up all the time.

miss plaquetas, itp blogs, blog about itp, ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp1. Miss Plaquetas

MISS PLAQUETAS is a wonderful account of living life with ITP.  Laura lives in Mexico City and writes in English and Spanish.  She also suffers  from Fibromyalgia and Chronic fatigue syndrome.  Laura’s insight and honestly about living with chronic illness is heart felt and inspirational.

Her INSTAGRAM feed is updated often and she connects to other ITP patients (In Spanish the acronym is PTI) via the Hashtag #PLATELETS platelets.

 ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp2. Guide 2 ITP

This is a great website for ITP.  GUIDE TO ITP has a magazine style layout and very comprehensive content – from food and nutrition to the latest research and what it’s like to live with ITP.

This is the website that produced the ITP Smartphone app ITP TRACKER that helps you to keep track of everything to do with ITP.  Guide 2 ITP is sponsored by Health Monitor and always has the most up to date medical research and treatments available as well as a huge list of PATIENT STORIES to read through.

low Platelets, platelets low, platelet count, what is itp, low platelet counts, itp blood, itp platelets, itp blood disease, itp autoimmune disease, itp blogs, blogs about itp,3. Rare Candace

RARE CANDACE is the blog of Candace, an ITP patient currently in remission ofter great success with “off-label” use of Rituxan.  Candace is very active in the ITP and rare disease community of American and is actively lobbying Congress as an outspoken supporter of HR 971, the OPEN ACT. ‘I am living proof that repurposing drugs deemed safe by the FDA can drastically change healthcare.‘ Candace.

Candace is currently studying a law degree

itp blogs4. ITP… In Our Words…

ITP…IN OUR WORDS an Australian ITP blog. It is a really positive blog with a personal focus.  ITP…IN OUR WORDS is for ITP’ers to express thoughts, feelings and lessons learned during their ride. Lots of Patient stories and contributions to the threads.  Greta Burroughs is also the author of Headaches and Miracles, her own personal ITP Story available to download from the website.

living with itp, itp blog5. Living with ITP

LIVING WITH ITP is a personal diarised account of what it is likeLIVING WITH ITP in New Zealand. Ruth, diagnosed with ITP in October 2010 at age 33 has journaled her personal experiences LIVING WITH ITP.  She hopes that it may provide insight and encouragement to others affected by or living with ITP or other related auto-immune disorders that affect the blood.

itp support, itp blog, itp and me6. ITP Support Australia

ITP SUPPORT is more of a website than a blog, but it is still great.  Started in 2012, here in Australia as a way of sharing information and gaining support from other people who have ITP.  ITP SUPPORT is also for parents of children with ITP.   The great part about this website is the forum attached, offering patients of every age (even a separate area for teenagers) to talk and share stories and thoughts.

low Platelets, platelets low, platelet count, what is itp, low platelet counts, itp blood, itp platelets, itp blood disease, itp autoimmune disease, itp blogs, blogs about itp,7. Me Myself and ITP

ME MYSELF AND ITP is a UK ITP blog from Katie Meloy. I’m writing this BLOG to keep a record of everything that has happened to me and help vent and channel any bottled up emotions and anger I may have, rather than attacking my nearest and dearest.

I aim to raise as much awareness as possible for ITP. The more people that hear about ITP and other auto-immune diseases the better.

ITP Blog, just francis, ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp, blood disorder 8. Just Francis

I found this Blog JUST FRANCIS while looking at pictures and infographs on Pinterest.  JUST FRANCIS is hard to find by searching for ITP Blogs at it is not solely dedicated to ITP.  There are some great articles on here about ITP including one from Francis’s sister Royann about living with ITP in the family.  It is so important to remember that having ITP affects those around us in significant ways.

itpandme, itp basic information9. ITP and Me

Obviously this website is our favorite itp blog.  We could not have written a post about itp blogs without including it.  ITP AND ME was established in 2010 by patients of ITP who were after more than just medical analysis and numbers and counts. ITP AND ME is Australian based and currently run by Meg Brewster, an ITP patient of more than 7 years. While the website specialises in Australian information and support, there is something for everyone from all over the world.

 

If you have a blog or website about ITP, please let us know about it so we can add it to our list.

by Meg

Meghan Brewster is a writer and blogger. She is an ITP patient and launched ITP&Me in 2011. She is a coffee lover and a try hard dancer. @meghan_brewster

4 thoughts on “The Best Blogs for ITP

  1. andrewvause@gmail.com'
    Andy says:

    My partner and I absolutely love your blog and find many of your post’s to be just what we are looking for. She was diagnosed with ITP in 2012, and while we have almost adjusted to the disorder, its nice to know people who have been struggling for longer are still finding it a crazy ride. Thanks for the info re more ITP blogs…

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