How do you Talk about Your Illness?

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How do you talk about your illness? Which words do you use to talk about your illness? What is your tone when you speak about it? How do you stand while talking about your illness and what about your body language? How do you describe your illness to your doctor, friends or your family?

For me, there is nothing worse than someone who bangs on and on about their illness. It’s exhausting. Especially when there is nothing you can do to help them and it doesn’t seem to be going away.

There is only so much of this I can listen to before I want to back away and never ask them how they are ever again. It’s unnecessary to go on and on like this. It doesn’t help anything.

Everyone is fighting something. Everyone has something huge to deal with in their life.

As a chronically ill person, I choose to discuss my illness as little as possible. I don’t want it to leak into my life. I don’t want it to be all they see. I don’t want it to get me down.

The more I think about it, the more I can’t ignore the impact of my speech upon my attitude. How I talk about my illness directly impacts how I feel towards my illness.

So this is my New Years Resolution when I need to discuss my illness, I will speak positively about ITP for a whole year. Continue reading

Feeling Grateful

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Giving thanks, or to put it another way, being nice first.

For a long time, I never realized just how important Thankfulness (is that a word?) and Gratefulness (that has got to be a word) is to Happiness (definitely a word).

For a long time, my default was to be in a bad mood, and then wait until things cheered me up. If I knew I had to get a blood test in the afternoon, I would waste an entire morning feeling sorry for myself in preparation for the afternoon.

I would head to the doctor too early, then waste too much time sitting around for no reason. Afterward, feeling sore and sorry for myself I would grumble all the way home, poor me… blah blah blah – my life sucks, needles are painful and intrusive and make me sad. Having ITP is shit… Blah blah blah…

There was no gain from being like this. I didn’t gain anything positive from acting like this. My blood count never changed on account of how much I worried about it, or grumbled about the doctor, or felt sad and sorry for myself. The tests never came less frequently the more I complained to my friends about how I was forced to waste my days off at the doctors.

It was so destructive to my happiness, worrying about the results and feeling anxious all morning. I was frustrated that I had to go to the doctor (again) and felt like I was wasting my life.

I was the one that was suffering, feeling flat and sad. And it was my own fault. I was doing nothing to help myself feel better. I was focusing on all the crap stuff.

Taking the time, every day to be grateful and thankful for the good things in your life instantly changes your mood. It makes you smile, it makes you think and it helps to put things into perspective. Just try and think of ten things right now that you can be thankful for today.

Here is my list.

  1. ITP being positive, tp, itp bruises, bruising easily, hide a bruise, Bruises, Bruise, itp, low platelet count,I am so grateful that Kate came to visit with cheese.
  2. I’m thankful for the cheap tray of mangos I bought a few days ago.
  3. I am thankful the weather is hot and nice.
  4. I am so luck to have a mothers group full of amazing, normal, positive and hilarious ladies…
  5. That the coffee shop at the end of my street is now open late.
  6. I am grateful that the dress I am wearing to a friend’s wedding will hide the bruises on the top of my knee.
  7. I’m so happy that my friend Susie has a beautiful new healthy baby boy!
  8. I’m grateful that my body responds to Prednisone.
  9. I feel so happy to have a doctor that cares about my health and is honest and kind with her advice.
  10. I am grateful to live in Australia and have access to a variety of treatment options.
  11. I am grateful that the bruise on my arm has only come up half the size I expected.

Ok, so that was 11! See how easy it is once you get on a roll…

This is nothing groundbreaking.  Gratitude has been always been seen as a way to get your mood back on track. This article is simply a reminder.  And I think we all need reminding every now and again.

It is easy to get carried away with the negative aspects of a Chronic illness.

This week, try and fight it – with a bit of love and thanks.


Inductions, A More Natural Approach

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Ok, so this is not really a post about living with ITP, but it will concern a lot of people with ITP if they are going to have a baby.  From what I’ve read online, and from my own experience, most pregnant women with ITP will likely be encouraged to have an induction as a means of minimising risks.

There are many benefits and many problems with inductions.   The biggest problem is a failed induction… and then where can you go from there.  Inductions are not fool proof.  The often fail to induce the longer for labor and in many cases will end up in a caesarian.  You only need to watch a few episodes of ONE BORN EVERY MINUTE to see how frequently inductions end in surgery.

If you are pregnant with ITP, you do not have to have an induction, it is up to you.  When the time comes, it is up to you, to evaluate the risks and decide what is best for you.

However, if you are reading this post, you are already in the middle of the pregnancy / induction dilemma, so I will spare you the speech about natural birth.  I’m sure very little about your pregnancy could be classified as ‘natural’.  I will focus on the benefits. Continue reading

Magnesium Oil Health Spray

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This Christmas I received a gift from Sydney based Kinesiologist Erin Straker, from ACHIEVING BALANCE.  She gave me this magic little bottle of MAGNESIUM OIL Spray.  Knowing I was pregnant, magnesium is a fundamental element in growing and developing healthy stretch mark free skin.

You spray it on your skin.  Magnesium Oil Spray is a transdermal spray traditionally used to slow the ageing process, relieve pain, grow healthy glowing skins, heals discomfort in muscles and joints and promotes health.

Magnesium is rapidly absorbed into the skin and is the most efficient method of restoring magnesium levels.

It is not really an oil at all but a salt solution, but who cares about that.  I have used it almost every day since and love it.

What does Magnesium do in the Body?

Magnesium is a mineral found in more than 300 enzyme systems that regulate diverse biochemical reactions in the body, including protein synthesis, muscle and nerve function, blood glucose control, and blood pressure regulation. Magnesium is required for energy production, oxidative phosphorylation (I have no idea what that is, but when I started to research it, I realised it was pretty dam important), and glycolysis (the conversion of glucose).

It increases the release of DHEA, our youth hormone, encourages healthy, glowing skin and supports the repair of damaged skin cells.

This is why I am taking it.  Because I do not want to damage my skin cells while pregnant.  I do not want to end up with long purple lines across my tummy, like I already have over my butt.

Is it helping my skin? Yes.  Do I have belly stretch marks? No.

Magnesium deficiency is a pretty common problem.  The signs of a mild Magnesium deficiency are hard to pinpoint.  Usually seen as a lifestyle factor, symptoms of a busy day – They could be put down to anything really, lack of sleep or dehydrations.

The symptoms of magnesium deficiency include hyperexcitability, muscular symptoms like cramps, tremor, spasms or weakness, fatigue, loss of appetite, apathy, confusion, insomnia, irritability, poor memory, and reduced ability to learn.

If you are looking to get a little Magnesium into your body, remember Magnesium is the third most abundant mineral in seawater – so go for a swim.  We absorb magnesium directly through our skin.

Make sure you use these sprays in conjunction with nutritional and heath advice from a trained professional, naturopath, kinesiologist, doctor or alternative health practioner who can give you personalised health information.

TWENTY-8 Magnesium Oil Health Spray

LIFE-FLO Pure Magnesium Oil


Raspberry Leaf Tea during Pregnancy

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There is not a lot that I can really say about the benefits of Raspberry leaf tea for women, especially during pregnancy.

It is an old wives tale, an untested herbal remedy, a myth, a story pregnant women tell each other, a common tonic discussed between midwives.  There is no scientific or medical research to claim that Raspberry leaf tea does anything for a pregnant woman’s uterus.

And yet…

Everybody raves about it… including me.

Everyone who has taken it mentioned positive birth experiences and quick healing after labor.

I’ve been drinking raspberry leaf tea since week 20 of this pregnancy.  A friend told me about it, and then a midwife, and then another friend mentioned it.  Yesterday a pregnant friend told me about raspberry leaf capsules.  When I walked into DR EARTH the other day they had run out of raspberry leaf tea, “Too many pregnant woman around at the moment,” the shop assistant remarked.  “They can’t get enough of it.”

My mum grows raspberries in her garden.  I’ve been lucky to have a free source of organic, locally grown fresh raspberry leaves at my fingertips.  I have just recently run out and have been wondering the streets looking for somewhere to buy it in Sydney.  Mum if you’re reading this… I need more!! X

So what is so great about these leaves?

Raspberry Leaves

Are naturally high in

  • magnesium,
  • potassium,
  • iron
  • b-vitamins which make it helpful for nausea, leg cramps, and improving sleep during pregnancy. The specific combination of nutrients in Raspberry Leaf makes it extremely beneficial for the female reproductive system.
  • vitamins E, A, and some B complex, as well as essential minerals such as
  • phosphorus,
  • zinc,
  • and an easily absorbable form of calcium, making it a wonderfully nutritive plant.

Many websites state that Raspberry leaf tea is high in Vitamin C also, however, I am pretty sure vitamin c is sensitive to heat and cooking, so I’m doubtful that boiling water is the best way to get vitamin c into your body.  Perhaps if you ate the leaves straight off the bush?

In a single STUDY I found, conducted at Westmead Hospital in 1998, raspberry leaf turned up some great results.  Of 108 pregnant women, those who took raspberry leaf during their pregnancy were more likely to have a shortened labour.

“An unexpected finding in this study seems to indicate that women who ingest raspberry leaf might be less likely to receive an artificial rupture of their membranes, or require a caesarean section, forceps or vacuum birth than the women in the control group.”

I will let you know how it works for me after the birth… At the moment I am opening to trying everything and anything to make sure this goes as well as I am imagining it can.

Try adding a little peppermint tea, fresh ginger and a hint of lemon to make sure you don’t get too bored with the taste.

If you are not lucky enough to have a mother that is an amateur raspberry farmer, check out Earth Mama Angel Baby ORGANIC THIRD TRIMESTER raspberry leaf tea or WOMAN’S RASPBERRY LEAF TEA by Yogi teas.

Change, It’s Benefits & How to do it

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Change has been on my mind.  It’s that time of year.  January is the month of NEW YEARS RESOLUTIONS and making plans for the future.  I can’t help thinking about how much I changed last year and wondering at the changes that will come in 2016.

I was once someone very different, then I changed.  I was once someone without an autoimmune disorder and then something changed and I became someone with ITP.  Which makes me think I am capable of changing back.

We all change all the time.  It is natural.  It is what keeps life exciting.  We grow, age, learn, develop, interact and are changed by the world and people around us.  So with all this change going on, how can we be sure we are making the right changes.  If we don’t stop and take notice, we might end up changed for the worse.

We are going to change whether we like it or not – So why not make sure we like it?  And why not be happy about the Benefits of that change? Continue reading