Meditations on Sleep

itp fatigue, itp sleep, low Platelets, platelets low, platelet count, what is itp, low platelet counts, itp blood, itp platelets, itp blood disease, itp autoimmune disease, itp blogs, blogs about itp,

Feature image from WOMENATHOME


November 2012 – I sleep a lot.  8 hours is not enough, 9 is about normal, 10 is a good night, 11 if it is the weekend.  I don’t try to sleep this much.  It just happens, my body likes it and is good at it and will get it any time it can.  I am tried almost all the time – perhaps because my body is constantly fighting an imaginary virus – my own blood.  Or perhaps I am just lazy?

Is it a symptom of having an Auto immune disease?

Do others suffering from ITP need as much sleep as I do?

May 2015 – Yes.  A lot of patients now are coming out about their ITP fatigue and general tiredness.  Most ITP patients sleep long hours when they can.  And are exhausted if they can’t.

low Platelets, platelets low, platelet count, what is itp, low platelet counts, itp blood, itp platelets, itp blood disease, itp autoimmune disease, itp blogs, blogs about itp,

This study only came out in 2015.

To read more click the abstract above.


My tips for moving house

itp, Blood disorder, treatments, help
itp, Blood disorder, treatments, help
the first wave

Before I was diagnosed with itp, in the weeks before I ended up in hospital, I organised to move house.  Moving house is enormous, lets be honest.  It is right up there with getting a divorce and having a loved one pass away, or so they say.  Over a couple of weeks, as I packed, lifted, unpacked, cleaned and rearranged my new place, I started to crash.  My arms where wrecked and covered in bruises, my body was tired and out of sorts, I was frustrated and emotional and not in a good way.  I lost all my energy and in every way fell apart.

Since that move, I have shifted house a few times and learnt a few basic tricks to keep on top of it all.  So what can you do to make sure that moving house does not completely destroy you, sending you backwards when you have been moving forwards for weeks?  How to not end up in hospital. Here is my list of tips.

1 Do not try and do it yourself.  Hire professionals to do all the lifting and moving for you.  They are not only fast but clean and efficient.

2 Have realistic expectations.  What can you really achieve in the amount of time you have?  Be really honest with yourself about this.  I tend to work out how much time I think I will need to move house, then add on like an whole other week.  Problems will always come up.  Plans will change and then suddenly it will be raining.

3 Don’t pack the crap.  Not everything from your old house needs to be packed and moved across.  Use this time as an opportunity to clean and sort and throw away a lot of stuff.  It is best then to start packing a week earlier than you think you need because deciding what to pack and what to chuck takes concentration and sometimes a lot of will power.  So don’t rush it.

4 Pack fast – Unpack slow.  Excitement and anticipation tends to lead people to unpack quite quickly once they are inside the new place.  This is a real kill joy tip, but try to unpack as slowly as you possibly can.  Do it once and get it right the first time, then you wont be moving things and furniture around a few times once you are in.  This constant shifting and unsettling and carry boxes between rooms can take more out of you than you think.

5 Be crazy about the labeling.  Need I say more?

6 Make a plan for you meals.  Packing up the kitchen, can often mean a bit of laziness creeps in, with regards to meals and home cooking.  Don’t use the packed up kitchen as an excuse to just eat out.  Pack the Kitchen last, unpack it first and make a list of every meal that might be eaten in the meantime.  Planning and being prepared for this time will help you stay organised and healthy.

7 Time for exercise.  Moving house is not exercise.  Even though your feel tired, your arms might ache and your falling to sleep where you stand, you still need to maintain your exercise routine.  Being stressed is not a cardio workout.  Exercising will put you in a better mood and keep you feeling sane and normal.

Good luck. X

Paleo – Week Two

eggs, teapot, starting paleo, itp, blood disorders

This week I am feeling a dramatic increase in overall energy.  I wonder if it is a placebo – Perhaps I just feel better because I feel in control of my diet and have found new inspiration for food and ingredients.  Time will tell.

I am feeling more confident to tell friends and family that I am eating Paleo.  I am ordering different foods at cafes and I am asking more questions.  They are interested, so excited, others defensive about my choices.  I am enjoying discussing it with friends and family, and laughing at how many times I have been told, that you simply can’t do that.

At the end of week two eating paleo, my skin is starting to clear up.  Pimples are disappearing and black heads are shrinking. Continue reading