Real Stories about ITP & Pregnancy

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Feature image from AGIRLSRIGHTTODREAM

Stories of Blood Disorder Pregnancies are scattered all over the web.  If you have the time and the resources to search for them all, there is some amazing information, but the real stories are often hidden behind hard to decipher medical journals and websites.  Here are a few that I found really helpful while I was looking for help online with my ITP Pregnancy.

HUGGIES FORUM – Pregnancy and ITP.  Here is a link to a forum where a number of women discuss their pregnancies with ITP.  They are all very positive stories about being monitored a lot, but not much else going wrong.

PLATELETS ON THE WEB – Christy shares her story of ITP for more than 20 years.  During that time, she gave birth to a healthy baby girl.  The whole story is here.

BABY CENTER – The story of a scheduled C-Section for a breech ITP baby.

An ARTICLE ON NAIT, or Neonatal Alloimmune Thrombocytopenia.  Here is a news article about the Jacob’s family who gave birth to two babies with Neonatal Alloimmune Thrombocytopenia.   Continue reading

Skin Care During Pregnancy

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Feature image from GRACE & GUTS

At 5 Weeks pregnant…

If stretch marks are ‘in your genes’, then I am going to get them.  Stretch marks run in my family. My mother has them, my sister has them, and I already have them on my breasts and hips.

While pregnant I am still taking a small amount of PREDISONE which damages my skin further.  Prednisone drys out my skin, making it thin and fragile.  I see the effects of taking prednisone in my weak nails, thin limp hair and dry thin skin.

So what can I do?

I’ve done a little research.  The internet recommends exercising, taking vitamin C, rubbing myself with vitamin E, keeping my skin moisturised, drinking heaps of water and eating healthy fats.  Friends are telling me to do the same.

While I am a little skeptical that these measures will work, I have nothing to loose by trying to keep stretch marks at bay?

So lets begin…
Continue reading

Inductions, A More Natural Approach

ITP Pregnancy, gestational thrombocytopenia, immune thrombocytopenia during pregnancy, breastfeeding with ITP, birth with ITP, ITP birth plan, low platelet pregnancy

Feature image from GRACE&GLAMOUR

Ok, so this is not really a post about living with ITP, but it will concern a lot of people with ITP if they are going to have a baby.  From what I’ve read online, and from my own experience, most pregnant women with ITP will likely be encouraged to have an induction as a means of minimising risks.

There are many benefits and many problems with inductions.   The biggest problem is a failed induction… and then where can you go from there.  Inductions are not fool proof.  The often fail to induce the longer for labor and in many cases will end up in a caesarian.  You only need to watch a few episodes of ONE BORN EVERY MINUTE to see how frequently inductions end in surgery.

If you are pregnant with ITP, you do not have to have an induction, it is up to you.  When the time comes, it is up to you, to evaluate the risks and decide what is best for you.

However, if you are reading this post, you are already in the middle of the pregnancy / induction dilemma, so I will spare you the speech about natural birth.  I’m sure very little about your pregnancy could be classified as ‘natural’.  I will focus on the benefits. Continue reading

Seeking Stories of ITP & Pregnancy

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Have you been pregnant while suffering from ITP, gestational thrombocytopenia or another bleeding disorder?

I’m currently working on a new book all about pregnancies, babies, women and blood disorders coming out in September this year!

I’m looking for stories, any interesting anecdotes and even people who I could email a few questions.

You may remain anonymous if you wish, sharing only what you wish to share.

If you have a story, please get in contact through itp.and.me.g@gmail.com.

Increase your Platelet count during pregnancy

ITP Pregnancy, gestational thrombocytopenia, immune thrombocytopenia during pregnancy, breastfeeding with ITP, birth with ITP, ITP birth plan, low platelet pregnancy

Feature image from VERYWELL

Having a lower platelet count during pregnancy is nothing to worry about, it kind of happens to everyone.

It is natural for a woman’s platelet count to drop during pregnancy.  Gestational thrombocytopenia usually develops in the third trimester and is not known to have any harmful effects on your baby. In fact, once you deliver, your platelets will get back to their normal count.

  • Although experts do not have the exact reason, but low platelet count is said to be a side effect of pregnancy.
  • If you have found out in your reports that your blood platelet count is low, you will need to make a report of this and inform your gynecologist.

Wheatgrass

In fact, it can produce significant increases in hemoglobin, red blood cell, total white blood cell and differential white blood cell counts. This happens because wheatgrass is high in chlorophyll with a molecular structure almost identical to the hemoglobin molecule in human blood.

Simply drink ½ cup of wheatgrass juice mixed with a little lemon juice daily.  TEN HOME REMEDIES

Spinach 

Spinach is a good source of vitamin K which is often used to help treat low platelet disorder. Vitamin K is required for proper blood clotting. Thus, it reduces the risk of excessive bleeding.

Vitamin C

To increase your platelet count, you need to increase your intake of vitamin C, also known as ascorbic acid. A study published in 1990 in the Japanese Journal of Hematology stated that vitamin C improves platelet count.

Being a powerful antioxidant, high doses of vitamin C also prevent free-radical mediated damage of the platelets. Your body requires 400 to 2,000 mg of vitamin C per day, depending on your age and overall health.

Zinc

Zinc is a mineral that all pregnant women should supplement with. Zinc deficiencies have been linked to fetal abnormalities and birth deformities. Zinc deficiencies have also been linked with low platelet counts, and zinc supplementation causes a dramatic rise in platelet aggregation. Reference the zinc article for information about the quality considerations of different zinc supplements.

Exercise

Healthiness – Lots and lots of healthiness.

 

ITP Pregnancy, The Birth

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 Feature image from ITP&ME

In the first few days after my son was born, I couldn’t shake this feeling that I had let him down in some way.  I kept thinking there must have been something I could have done better, some sign I could have noticed earlier, another hour bouncing on the fit ball, or another 20 minutes inverted off the couch, that might have made his entry into the world a little calmer, happier and healthier.  

In the first weeks, I slept terribly.  I was happy, don’t get me wrong.  I was having the most wonderful time during the day and into the night with him.  But just in those moments right before I drifted off to sleep, I would replay the birth in my mind, looking at all the little moments I should have done something differently.

Don’t worry.  My feelings about of the birth have changed a lot since then.  

The more information I have and the more I come to understand the events, the prouder I am about how everything happened.  As I learn about footling breech births, remember more and more, and as I speak to other women about their birth stories, I’m starting to consider the whole thing an incredible fucking success.  

I am glad I waited a little while before writing this.  Had I written this article earlier, it may have sounded like a completely different story.  So here it is… The story of our ITP Baby.  

(In saying that, I don’t believe it is possible to ever really tell your birthing story.  There is no way to sum it all up or convey everything that happened.  When I talk about the birth of our son with others, I find my words falling so short of the mark; such a blunt instrument to play such a complex sound.)

The birth of my son was a triumph over the medical profession’s interpretation of a high-risk pregnancy.  It is considered legendary among midwives and doctors.  It was beautiful.  But it was nothing like the sacred feminine worship, I was lead to believe birth was (could be).   Continue reading