Feature image from WEHEARIT (Apologies for the terrible spelling)
I know the feeling. A good friend is sick and I want to be there for them. I’m interested in their problems but their condition doesn’t quite make sense to me. I’m not sure how to ask the right questions without offending them. So instead I don’t ask. I pretend I understand, nod my head and try to say positive things. But all the while I’m thinking, it doesn’t sound too bad.
Well, my friends were brave enough to ask the questions your friend might be holding back. Here is one of our most honest conversations about ITP and how it affects patient lives. It is also a wonderful insight into how others perceive ITP. The answers to 12 questions your friends might be too scared to ask.
Q. Is ITP the same thing or similar to the disease that the heir to the Russian throne who was killed by the Bolsheviks, Alexei Nikolaevich, had? I think he had haemophilia?
A. ITP is kind of similar to haemophilia, but at the same time very different. While haemophilia is a hereditary disease, ITP is an autoimmune disorder. Haemophilia is quite rare and will most likely affect men as it is associated with the Y chromosome. ITP is more prevalent in women.
More people have ITP and it is overall more responsive to treatments, making ITP an easier disorder to live with day to day – but still just as dangerous in emergencies and accidents.
Q. I understand that ITP has something to do with bruising. Bruising doesn’t seem that bad. I bruise every time I bang my shin against the coffee table. What’s the big deal? Continue reading