Are Vaccines Causing ITP?

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Feature image from ITP & ME

They say that there is no know cause for ITP.  All the information points to a combination of genetic susceptibility, life style, stress, immune function and whatever…  The list goes on.  If you have ITP then you are probably sick of hearing all the reasons why some people get ITP and other people don’t.

While researching an article for ITP and Me, I came across a very interesting pie graph that I wanted to share with my readers.  I was looking for information on PEOPLE LIVING WITH ITP for another article, and I found heaps.  I pulled it from a public presentation from a medical conference in 2012.  It was a pie graph that depicted the prevalence of Secondary ITP in relation to Primary ITP.

Look at the following image closely.  Notice there is a little black line that does not have any writing next to it.

Secondary ITP, Primary ITP, ITP facts, People with ITP

 

  • Primary ITP accounts for 80% of all cases of ITP.
  • SLE or Systemic Lupus erythematosus or Simply Lupus accounts for 5% of cases. 
  • APS or Antiphospholipid Syndrome or Hughes Syndrome or Sticky Blood accounts for 2% (ME!)
  • CVID or Common Variable Immunodeficiency accounts for 1 %
  • CLL or Chronic lymphocytic leukaemia accounts for 2 %
  • Evan’s or Evan’s Syndrome accounts for 2 %
  • ALPS of Autoimmune Lymphoproliferative Syndrome is responsible for 1 %
  • HIV or Human Immunodeficiency Virus accounts for 1 %
  • Hep C of Hepatitis C has about 2 % of ITP cases
  • H. Pylori or Helicobacter pylori is 1 %
  • Misc Systemic Infection which would be Miscellaneous Infections account for 2 % of ITP Cases

Then I found this …

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Livingston’s Meredith Prescott to Hold 5K Fundraising Run

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After a very successful event, raising over $45,000, I decided to plan my second 5k walk/run this June with another fighter, Linda McGuirl, to find a cure and help rid this world of ITP. Linda and I were both diagnosed at 21, and although we are decades apart in age, we both take strong pride in raising awareness and taking control of ITP. Riding the roller coaster in the world of ITP is so much better when you’re not riding alone.

Don’t let your compassion stop at wishing to see others free from suffering. Do something.

To pre-register, or make a donation or for more information, visit this link.

Registration/Check-in will begin at 12:00pm and the event will begin at 12:30pm at the Livingston Oval in Livingston, NJ on Sunday, June 8th.

If you can’t make it to the run but you would still like to be a part of raising itp Awareness, you can join the dicussion on Instagram.  Lots of itp patients are spreading the itp awareness love at Hashtag #itpawareness!  Share your photos today.

 

New International ITP Register; Founded in Australia

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On the 5th of March 2012, a Media Release was sent out to announce the opening of the first International Register for ITP (Idiopathic Thrombocytopenic Purpura) patients.  Australians will be proud to learn that it was started by the Australian Professor Beng Chong from St George Hospital.  While there is a lot of information being circulated amoung medical professionals, this Register will be the first official link between haematologists around the world.

 The registry has attracted interest from renowned haematologists worldwide.

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Full Media Release Here

Registry Project Manager, Sarah Davidson, said the registry would enable clinicians to build a complete picture of ITP and collect data from many ethnic groups across the world.  “There is increasing evidence that the disease and its response to drug treatments could be very different among patients with different ethnic backgrounds,” Ms Davidson said.

In Australia, with such a widely spread out population, patients with itp pop up in small numbers, spread out from each other.  Collecting data where ever possible will help to finally build a comprehensive and accurite portrait of the disease.  Professor Chong stated that “There is a lack of necessary data concerning the epidemiology, diagnosis and treatments of ITP, which is needed to improve patient management and healthcare planning”.

The registry has attracted interest from renowned haematologists worldwide, including those from Japan, Korea, India, China, Singapore, Turkey, Israel and Brazil.

The registry is open to recruitment at St George Hospital and is taking on patients newly diagnosed with itp.  If you wish to be a part of the study or would like more information contact Sarah Davidson, Registry Project Manager on 9113 2446.