Christmas Books

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Simple gift ideas for people with ITP and Autoimmune disorders, or perhaps a nice selection for yourself.  These books will make excellent presents and insightful holiday reading.  Enjoy.

ITP and Christmas, gifts for people with ITP, Blood disease itp, itp platelet disease, itp autoimmune diseaseWOMEN AND AUTOIMMUNE DISEASE, by Robert G. Lahita

The mysterious ways your body betrays itself.  Robert G. Lahita, is the doctor who wrote the textbook on autoimmune disease for medical professionals, as well as a layperson’s book on rheumatoid arthritis.  Here he concentrates here on how autoimmune diseases afflict women, who make up 75% of cases nationwide.

A cutting-edge examination of the mysterious world of autoimmune disease—and the new discoveries made daily that may save women’s lives.  Through case studies, he reveals the early warning signs, symptoms, diagnostic processes, and the most innovative treatments for all the most common—and many of the less well known—autoimmune diseases. He offers a scientifically sound and sensitive work that is the best resource available to help understand these perplexing and debilitating diseases.

Make Peace with your Plate, wellness warrior, ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp.MAKE PEACE WITH YOUR PLATE, by Jess Ainscough

Jess tragically passed away in February of this year and while her BLOG is currently (at the time of writing this post) inactive, there is a lot to be said about her positive message.  Jess Ainscough was a warrior of joy, health, positive body image, following you instincts, nurturing your body, and making peace with food.

Her book is a wonderful read with great recipes and an obtainable message.  Take care of yourself as best you possibly can with as much information as you have at the time. Continue reading

Book Review; Wish by Spirit

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Joan Young’s life dramatically changed when she was diagnosed with Immune Thrombocytopenia.  After an overwhelming response to a website she created, Joan eventually founded the Platelet Disorder Support Association or PDSA.  The PDSA has been running since 1997, and this organization now reaches out to blood disorder patients in over 130 countries.

WISH BY SPIRIT is the story of her journey.  From the very beginning, the reader knows that this is a story of healing.  I began reading this book knowing that there was a secret waiting for me at the end of the book.

A long time has passed since Young came through her battle with ITP, and many things have changed since then.  Treatments, attitudes, knowledge and understanding have all developed to help western and alternative practitioners treat patients with ITP together.

The Introduction to WISH BY SPIRIT is quite engrossing.  It’s clear from the start that Joan is a great writer.  I loved reading the conversation she had with her doctor where all the radical treatments were discussed and decided on before Joan had a moment to understand the disease she had. Continue reading

Women Who Have Cured Their Autoimmune Disorders

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Here are three books by women who have healed their autoimmune disease.  This article is not intentionally about women only, I just couldn’t find any books written by men.  If you know any please add them to the comments below.

You can heal your lifeYou Can Heal Your Life by Louise Hay, Hay House Publishing

Louise Hay is credited as a founder member of the self-help movement.  Louise was able to put her philosophies into practice when she was diagnosed with cancer.

Hay considered the alternatives to surgery and drugs, and instead developed an intensive program of affirmations, visualization, nutritional cleansing, and psychotherapy. Within six months, she was completely healed of cancer.

This book is hard to handle if you’re not ready to hear that you might be responsible for your own disease.  It’s an interesting read based on anecdotes and word of mouth, but there is also a truth that is hard to argue with.  That if your immune system can kill your platelets then your immune system is capable of stopping killing your platelets. Continue reading

H. Pylori and Chronic ITP

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Comments about people with ITP and H. PYLORI infections are popping up all over the place.  HEREHERE & HERE.  In each case, people with ITP have seen an increase in their platelet counts after being treated for a Helicobacter Pylori infection.

What is a Helicobacter Pylori infection?

H.Pylori is a gut infection.  It is difficult to discover and treat, as H. Pylori burrow into the digestive mucosal lining and hide itself.  For the immune system to attack an infection of H. Pylori, the immune system needs to start destroying your stomach lining to get to it.  Grose hey?  This causes the immune system to be chronically active and overworked.  Perhaps the first step in a chain reaction that can cause the immune system to target the body.

What are the symptoms of H.Pylori infection?  Most people will have no symptoms at all.  A few patients may eventually present with a peptic ulcer.  An even smaller amount of patients with H. Pylori may end up with stomach Cancer.  Others may simply have indigestion, bloating or other symptoms of stomach inflammation.  Or no symptoms at all. Continue reading

What Your Blood Type Says About You; O-Baby!

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Have you heard of the EAT RIGHT FOR YOUR TYPE  blood type diet?  I am a Type O. I have heard a few people talking about the Eat Right For Your Type diet over the years.  My sister in law and mother have had huge success with it.  When researching my blood type I was struck by the fact that it was recommended that I eat paleo and do high-intensity physical exercise.  These are the things I have naturally been drawn to without knowing it.

After a little online reading, I discovered that TYPE O have one of the toughest digestive systems out there.  We also have the most overactive immune systems of all the blood types.  That type O respond best to stressful situations with intense physical exercise and feel great after vigorous workouts.  Which might explain why I love pushing myself in Ballet class.

There are many people who believe that your blood type says about as much about you as your star sign (As in…Nothing!).  Well, I believe.  I am a Pisces and fit the description perfectly.

The EAT RIGHT FOR YOUR TYPE diet was released in 1996 by Peter J.D’Adamo.  It was also rereleased in 2004 as a new edition.  Each edition of the book received a lot of criticism from the scientific community.  In the book Peter J. D’Adamo described ongoing clinical trials; however no clinical trial results have been published.

So I am approaching this ‘science’ with the same enthralled mysticism I bring to Personality tests, star signs and Chinese birth years; with one hundred percent interest.  According to the book…

TYPE O (Me)

People with type O blood are most suited to an animal protein diet and intense physical exercises such as jogging or aerobics.  People with O blood type may be more likely to have depression and intense anxiety.  Typical of blood disorders.

TYPE A

People with a type A blood are most suited to a vegetarian diet and calming physical exercises such as yoga or tai chi.  You know those people who are vegetarians and love yoga and are always trying to get you to do Tai Chi?  Chances are they might have Type A blood.  People with A blood type may be more prone to getting an obsessive-compulsive disorder.  Children may be at a greater risk of having attention-deficit disorder.

TYPE B

People with a type B blood are able to enjoy the widest variety of foods as they have a very tolerant digestive track.  They should focus on moderate physical exercises such as cycling or swimming.  Children with B blood type may have a lower risk of being diagnosed with attention-deficit disorder.

TYPE AB

People with a type AB blood are people with the fewest problems with allergies and digestive problems.  People with AB blood need not panic about their future cognitive wherewithal, who’s brains are apt to benefit from a healthy diet and regular exercise for the body and brain.

Sounds Crazy?

This might all sound about as crazy to you as the Bura-Hara Blood Group Harassment movement in Japan.  If it does never mind.  But if there is something here that makes a little sense to you, let me know.

Further Reading

The BEST WORKOUT For Your Blood Type, from Prevention

Blood Type MATTERS FOR BRAIN HEALTH, from Scientific American

BLOOD TYPE DIET from Body Electric

Blood type INDICATOR OF HEALTH

The BLOOD TYPE WORKOUT

 

Cheryl

Paleo, Autoimmune protocol, eating for itp, ITP diet, itp eating paleo, low platelet count diet, living with itp, chemical free itp food,

I would like to add to Robert’s story if I may, and tell you about my experience with ITP.

I lived in Australia at the time but was on holiday in New Zealand when I was diagnosed. That was two years ago in December 2012. I was 57 and had a platelet level of 4,000. Before this time I had previously been fit and healthy, although recently under a lot of stress. Over the course of the first year I was on the same roller coaster Robert describes. I had all the tests and infusions. My platelets went up and down, and the dose of Prednisone increased or decreased to try and manage it.

After being on high doses of prednisone for so long the side effects were awful. I didn’t recognise the big moon face staring back at me from the mirror, and my brain was in a fog. Because of this fog I went along with what the doctors were telling me. They had said at the beginning my best option was to have my spleen removed. I resisted for as long as I could, but in October 2013 I finally gave in because I had to get off the prednisone. After the operation my platelets went from 6,000 to 665,000. Things looked promising and I started to reduce the dose of prednisone very slowly. But less than four weeks later they had plunged to 9,000. The splenectomy was a failure and I had to increase the prednisone again.

I didn’t want to accept what everyone says about ITP; that there is no known cause and no known cure. With my platelets hovering between 13,000 and 73,000, over the next two months I wracked my brains to try and think what might have happened in my body to cause my immune system to go haywire. It took all of that time to realise it was actually a chain of events that triggered it. I believe it started with my overuse of Nurofen which I was taking for chronic back pain. Nurofen contains the analgesic ibuprofen, an NSAID. Nurofen is known to damage the intestinal lining if overused, causing a permeable gut. I only discovered this after I had a bleed. I stopped taking it immediately but by then the damage had been done.

With toxins now leaking from my gut into my body, my immune system went into overdrive. This led to an acute sensitivity to salicylates, a naturally occurring chemical found in most foods which I’d had in a mild form all my life without realising it. Now I had IBS in a big way but still didn’t know it was salicylate intolerance. It started very suddenly and at first I thought it was gastro. But it kept happening after nearly everything I ate. I was losing weight fast. My doctor sent me for lots of tests which all came back negative. He didn’t know about salicylates so just said to take antacid when I needed it. Continue reading