Real Stories about ITP & Pregnancy

aps, hughes syndrome, ITP Pregnancy, gestational thrombocytopenia, immune thrombocytopenia during pregnancy, breastfeeding with ITP, birth with ITP, ITP birth plan, low platelet pregnancy

Feature image from AGIRLSRIGHTTODREAM

Stories of Blood Disorder Pregnancies are scattered all over the web.  If you have the time and the resources to search for them all, there is some amazing information, but the real stories are often hidden behind hard to decipher medical journals and websites.  Here are a few that I found really helpful while I was looking for help online with my ITP Pregnancy.

HUGGIES FORUM – Pregnancy and ITP.  Here is a link to a forum where a number of women discuss their pregnancies with ITP.  They are all very positive stories about being monitored a lot, but not much else going wrong.

PLATELETS ON THE WEB – Christy shares her story of ITP for more than 20 years.  During that time, she gave birth to a healthy baby girl.  The whole story is here.

BABY CENTER – The story of a scheduled C-Section for a breech ITP baby.

An ARTICLE ON NAIT, or Neonatal Alloimmune Thrombocytopenia.  Here is a news article about the Jacob’s family who gave birth to two babies with Neonatal Alloimmune Thrombocytopenia.  

Are you interested in sharing your ITP Pregnancy Story? 

ITP & Me are currently calling out to any women or families who have experience with ITP Pregnancies and would be willing to share their stories, be interviewed or contribute in any way to a new book about ITP Pregnancy coming out next year.  You may remain anonymous if you wish.

 

by Meg

Meghan Brewster is a writer and blogger. She is an ITP patient and launched ITP&Me in 2011. She is a coffee lover and a try hard dancer. @meghan_brewster

One thought on “Real Stories about ITP & Pregnancy

  1. cgyory11@yahoo.com'
    Corrie says:

    My 6 year old was diagnosed ITP at the ripe ol’ age of 22months. We’ve been dealing with it since then. She’s currently in the middle of finding a treatment that works, but platelets have been between 2,000-6,000 for the last 5 months. She’s had everything from MRIs, CAT scans and bone marrow biopsys. The struggles been real. As a parent it’s so hard to be helpless and just watch. It’s emotionally, mentally, financially and physically exhausting. We’re praying she grows out of it before it effects her whole life, the rest of her life.

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