Feature image from LARTIGUE
I have not written much here at the moment because there hasn’t been much to write.
I have been getting regular blood tests and the results have been coming back ‘not too bad’ but ‘not too great either’. I’m in limbo at the moment and I keep thinking is, sit tight Meg and try not to die, something will change soon. There doesn’t seem to be anything else I can do.
Does anyone else feel like this?
I’m in limbo, waiting for something to happen, waiting for something to change. If I got better I wouldn’t need to worry anymore. If I was worse there would be things I could do. But I am somewhere in the middle … waiting.
After 10 years, I know more about ITP than most of the doctors I see. I know enough to know that visits to haematologists can sometimes feel like a waste of time, especially with an inbetween platelet count of not much at all. There is very little that can be done.
So for now, I will sit tight and try not to die.