On the 5th of March 2012, a Media Release was sent out to announce the opening of the first International Register for ITP (Idiopathic Thrombocytopenic Purpura) patients. Australians will be proud to learn that it was started by the Australian Professor Beng Chong from St George Hospital. While there is a lot of information being circulated amoung medical professionals, this Register will be the first official link between haematologists around the world.
The registry has attracted interest from renowned haematologists worldwide.
Registry Project Manager, Sarah Davidson, said the registry would enable clinicians to build a complete picture of ITP and collect data from many ethnic groups across the world. “There is increasing evidence that the disease and its response to drug treatments could be very different among patients with different ethnic backgrounds,” Ms Davidson said.
In Australia, with such a widely spread out population, patients with itp pop up in small numbers, spread out from each other. Collecting data where ever possible will help to finally build a comprehensive and accurite portrait of the disease. Professor Chong stated that “There is a lack of necessary data concerning the epidemiology, diagnosis and treatments of ITP, which is needed to improve patient management and healthcare planning”.
The registry has attracted interest from renowned haematologists worldwide, including those from Japan, Korea, India, China, Singapore, Turkey, Israel and Brazil.
The registry is open to recruitment at St George Hospital and is taking on patients newly diagnosed with itp. If you wish to be a part of the study or would like more information contact Sarah Davidson, Registry Project Manager on 9113 2446.