Talking Red is the Haemophilia Society UK’s new campaign to get women talking about bleeding disorders. A bleeding disorder is a serious lifelong condition often requiring daily treatment and specialist care. Many people don’t know they have a bleeding disorder. In fact, tens of thousands of women across the UK are living with the symptoms of a bleeding disorder without even knowing it.
The Platelet Disorder Support Association, founded in August 1998, is an American non-profit corporation that provides information and support to encourage research about ITP and other platelet disorders. This organization is devoted to offering the most timely, accurate, and comprehensive information about ITP and platelet disorders. These guys are the ones that sell the Purple Bracelets for September 28th, ITP Awareness day.
The ITP Foundation is another American non-profit organization established to raise awareness of Immune Thrombocytopenia. The mission of the ITP Foundation is to increase awareness and improve the diagnosis and treatment of children and adolescents with Immune Thrombocytopenia. The ITP Foundation helps to raise funds to further ITP research.
The Australian Centre for Blood Diseases aims to provide excellence in the diagnosis and treatment of blood conditions as well as play a leading role in the advancement of knowledge in this increasingly important area of Medicine. The ACBD is involved in research programs, clinical trials and patient education as a connected research centre of Monash University. The ACBD also has an active Eastern Clinical Research Unit.
While these articles can appear quite dense and hard to interpret, there is a great deal of information to be found in this online journal. This is where the current research is being published in relation to ITP and other blood disorders. There are also clinical trial results presented for the first time and active discussion about relevant issues such as blood donations, medical insurance and the role of the spleen in immune function. There are also some very positive articles about the possibilities of itp and pregnancy if you can find them. This site can be a bit hard to navigate, but it is worth your while.
The ITP Support Association is an independent UK registered charity which aims to promote and improve the general welfare of people with Immune Thrombocytopenia by providing support and information to patients, their families, and health professionals. This website receives no external funding or sponsorship. These are the guys that got ITP discussed in the House of Commons.
A Support group for those patients and their families living in New Zealand with ITP. Started in 2014 by Wendy Grace Allen, the group was created as a place for ITP patients to connect with each other.
Do you have more than one Autoimmune Disorder?
Most people with an autoimmune disorder or disease will have more than one.
Autoimmune disorders come in a set.
Check out The Best Blogs for Autoimmune Disorders list here.