Helpful Links to ITP Support

ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp. Famous people with itp, celebrities with itp, low platelet count,

Talking Red (#talkingred) From the Haemophilia Society UK

Talking Red is the Haemophilia Society UK’s new campaign to get women talking about bleeding disorders.  A bleeding disorder is a serious life long condition often requiring daily treatment and specialist care.  Many people don’t know they have a bleeding disorder.  In fact, tens of thousands of women across the UK are living with the symptoms of a bleeding disorder without even knowing it.

 

Platelet Disorder Support Association – PDSA

The Platelet Disorder Support Association, founded in August 1998, is an American non-profit corporation that provides information and support to encourage research about ITP and other platelet disorders. This organization is devoted to offering the most timely, accurate, and comprehensive information about ITP and platelet disorders. These guys are the ones that sell the Purple Bracelets for September 28th, ITP Awareness day.

itp help, itp information, itp and kids

The ITP Foundation, For Children With ITP

The ITP Foundation is another American non-profit organization established to raise awareness of Immune Thrombocytopenica. The mission of the ITP Foundation is to increase awareness and improve the diagnosis and treatment of children and adolescents with Immune Thrombocytopenia. The ITP Foundation helps to raise funds to further ITP research.

Australian Centre for Blood Diseases  – ACBD

itp information, itp help, treatment, support

The Australian Centre for Blood Diseases aims to provide excellence in the diagnosis and treatment of blood conditions as well as play a leading role in the advancement of knowledge in this increasingly important area of Medicine.  The ACBD is involved in research programs, clinical trials and patient education as a connected research centre of Monash University.   The ACBD also has an active Eastern Clinical Research Unit.

Journal of the American Society of Hematology

itp information

While these articles can appear quite dense and hard to interpret, there is a great deal of information to be found in this online journal.  This is where the current research is being publishing in relation to ITP and other blood disorders.  There are also clinical trial results presented for the first time and active discussion about relevant issues such as blood donations, medical insurance and the role of the spleen in immune function.  There are also some very positive articles about the possibilities of itp and pregnancy if you can find them.  This site can be a bit hard to navigate, but it is worth your while.

 The ITP Support Association – UK

itp support Association uk

The ITP Support Association is an independent UK registered charity which aims to promote and improve the general welfare of people with Immune Thrombocytopenia by providing support and information to patients, their families, and health professionals. This website receives no external funding or sponsorship.  These are the guys that got ITP discussed in the House of Commons.  Well Done.

ITP New Zealand

ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp. Famous people with itp, celebrities with itp

A Support group for those patients and their families living in New Zealand with ITP.  Started in 2014 by Wendy Grace Allen, the group was created as a place for ITP patients to connect with each other.


Do you have more than one Autoimmune Disorder?

Most people with an autoimmune disorder or disease will have more than one.

Autoimmune disorders come in a set.

Check out The Best Blogs for Autoimmune Disorders list here.

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by Meg

Meghan Brewster is a writer and blogger. She is an ITP patient and launched ITP&Me in 2011. She is a coffee lover and a try hard dancer. @meghan_brewster

One thought on “Helpful Links to ITP Support

  1. grumpytammi@hotmail.com'
    Tammi says:

    I just found out I have ITP in October. Have been taking steroids and have had 4 chemo treatments. When I was hospitalized they lowered my anti depressants and with the steroids I feel like a whale. I’m super tired, exhausted, depressed, moody and very frustrated as to why we lower steroids number goes down. I have been as low as 0. Two weeks in the hospital it didn’t go over 20. I feel like my depression is getting the better part of me and nobody can understand.

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