Feature image from AVJENNINGS
Welcome to Paulien's Story
Hi! My name is Paulien Barkmeyer and I am LIVING with ITP! The operative word being LIVING!
Much like you, I have been on a tremendous journey of highs, lows, ups, downs and insides outs finding a way to come to terms with this condition and after approx. 7 years I have finally come to the point of “living with” rather than “a battle against” ITP. My numbers continue to be pretty crappy, my energy levels wane and all the other bits and pieces that go along with our condition. I’ve finally given up my dream of being a Roller Derby Queen!
My health and health habits are probably the best they have ever been. My life is filled with joy and joyful activities.
As you are well aware, your life can become consumed with treatment regimes, blood numbers and endless prodding and pricking from various health professionals. Searching for a “cure” can get you down and depressed However, only in the last years or so have I reframed my view of this situation.
I figure there are plenty of things I have no influence or control over so I made a decision to focus my energy and attention to the things I can influence. I’m certainly not putting on my “rose coloured glasses”, just looking at my life and condition differently! Currently, there is no changing the fact that I LIVE with ITP and try as I might, it may never go away.
I liken my shift in perspective a little like getting caught in a rip and “going with it” rather than to expend all my energy fighting against it. I’m just “riding the wave” baby!
Some of the more practical habits I have put into place include: Continue reading