Real Stories about ITP & Pregnancy

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Feature image from AGIRLSRIGHTTODREAM

Stories of Blood Disorder Pregnancies are scattered all over the web.  If you have the time and the resources to search for them all, there is some amazing information, but the real stories are often hidden behind hard to decipher medical journals and websites.  Here are a few that I found really helpful while I was looking for help online with my ITP Pregnancy.

HUGGIES FORUM – Pregnancy and ITP.  Here is a link to a forum where a number of women discuss their pregnancies with ITP.  They are all very positive stories about being monitored a lot, but not much else going wrong.

PLATELETS ON THE WEB – Christy shares her story of ITP for more than 20 years.  During that time, she gave birth to a healthy baby girl.  The whole story is here.

BABY CENTER – The story of a scheduled C-Section for a breech ITP baby.

An ARTICLE ON NAIT, or Neonatal Alloimmune Thrombocytopenia.  Here is a news article about the Jacob’s family who gave birth to two babies with Neonatal Alloimmune Thrombocytopenia.   Continue reading

Skin Care During Pregnancy

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Feature image from GRACE & GUTS

At 5 Weeks pregnant…

If stretch marks are ‘in your genes’, then I am going to get them.  Stretch marks run in my family. My mother has them, my sister has them, and I already have them on my breasts and hips.

While pregnant I am still taking a small amount of PREDISONE which damages my skin further.  Prednisone drys out my skin, making it thin and fragile.  I see the effects of taking prednisone in my weak nails, thin limp hair and dry thin skin.

So what can I do?

I’ve done a little research.  The internet recommends exercising, taking vitamin C, rubbing myself with vitamin E, keeping my skin moisturised, drinking heaps of water and eating healthy fats.  Friends are telling me to do the same.

While I am a little skeptical that these measures will work, I have nothing to loose by trying to keep stretch marks at bay?

So lets begin…
Continue reading

Inductions, A More Natural Approach

ITP Pregnancy, gestational thrombocytopenia, immune thrombocytopenia during pregnancy, breastfeeding with ITP, birth with ITP, ITP birth plan, low platelet pregnancy

Feature image from GRACE&GLAMOUR

Ok, so this is not really a post about living with ITP, but it will concern a lot of people with ITP if they are going to have a baby.  From what I’ve read online, and from my own experience, most pregnant women with ITP will likely be encouraged to have an induction as a means of minimising risks.

There are many benefits and many problems with inductions.   The biggest problem is a failed induction… and then where can you go from there.  Inductions are not fool proof.  The often fail to induce the longer for labor and in many cases will end up in a caesarian.  You only need to watch a few episodes of ONE BORN EVERY MINUTE to see how frequently inductions end in surgery.

If you are pregnant with ITP, you do not have to have an induction, it is up to you.  When the time comes, it is up to you, to evaluate the risks and decide what is best for you.

However, if you are reading this post, you are already in the middle of the pregnancy / induction dilemma, so I will spare you the speech about natural birth.  I’m sure very little about your pregnancy could be classified as ‘natural’.  I will focus on the benefits. Continue reading

Seeking Stories of ITP & Pregnancy

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Have you been pregnant while suffering from ITP, gestational thrombocytopenia or another bleeding disorder?

I’m currently working on a new book all about pregnancies, babies, women and blood disorders coming out in September this year!

I’m looking for stories, any interesting anecdotes and even people who I could email a few questions.

You may remain anonymous if you wish, sharing only what you wish to share.

If you have a story, please get in contact through itp.and.me.g@gmail.com.

ITP Pregnancy, The Birth

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 Feature image from ITP&ME

In the first few days after my son was born, I couldn’t shake this feeling that I had let him down in some way.  I kept thinking there must have been something I could have done better, some sign I could have noticed earlier, another hour bouncing on the fit ball, or another 20 minutes inverted off the couch, that might have made his entry into the world a little calmer, happier and healthier.  

In the first weeks, I slept terribly.  I was happy, don’t get me wrong.  I was having the most wonderful time during the day and into the night with him.  But just in those moments right before I drifted off to sleep, I would replay the birth in my mind, looking at all the little moments I should have done something differently.

Don’t worry.  My feelings about of the birth have changed a lot since then.  

The more information I have and the more I come to understand the events, the prouder I am about how everything happened.  As I learn about footling breech births, remember more and more, and as I speak to other women about their birth stories, I’m starting to consider the whole thing an incredible fucking success.  

I am glad I waited a little while before writing this.  Had I written this article earlier, it may have sounded like a completely different story.  So here it is… The story of our ITP Baby.  

(In saying that, I don’t believe it is possible to ever really tell your birthing story.  There is no way to sum it all up or convey everything that happened.  When I talk about the birth of our son with others, I find my words falling so short of the mark; such a blunt instrument to play such a complex sound.)

The birth of my son was a triumph over the medical profession’s interpretation of a high-risk pregnancy.  It is considered legendary among midwives and doctors.  It was beautiful.  But it was nothing like the sacred feminine worship, I was lead to believe birth was (could be).   Continue reading

ITP Autoimmune Birth Plan; Labour with Low Platelets

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In the lead up to delivery, I thought a lot about Birth Plans with ITP.  Makes sense right?  We were about to have a little ITP Baby and I wanted to know what that meant, how my ITP was going to change things and what potential risks we should be aware of.

By simply writing an ITP Birth Plan, I was forced to research my options and educate myself about what may happen during our birth.  Even if no one ever reads our birth plan (which I doubt will happen) I know I will have gone through to process of preparing myself for all the possible options during birth.

I thought it was important to share my thoughts and planning, especially to help others get around this very huge time and to make a plan for themselves.

I felt wonderful after I finished writing my own ITP Birth plan.  Unfortunately, he came before I got a chance to read through the draft and get it printed.

So what is a Birth Plan?

A birth plan is a way of clearly communicating to those around you what you would like, need and expect during the birth.  Birth Plans usually include both your medical and emotional needs during labour.  They are a clear way to communicate your wishes and needs to your medical professionals, your labour support people and your friends and family.

This is by no means a comprehensive list of everything you need to consider – Think of these more as ideas and thoughts that will send you on your way to getting a great birth plan.  The following ITP Birth Plan is intended for those having a hospital birth.  If you are well enough to have a home birth then not everything below will apply to you.

Many might laugh at the mention of a birth plan.  “Planning your birth,” they quaff, “You can’t plan a birth, it will be however it will be.” – Not true.

Times have changed.  These days, women and families have options, choices and are taking more and more control over their birthing experience.  But there is some truth in the statement, “You can’t possibly plan how a birth is going to go.” So instead of thinking of it as a ‘Birth Plan’, perhaps think of is as your birthing intentions or strategy.

 

What Does an ITP Birth Plan Look like?

This was something that confused me for a long time, what does a birth plan actually look like?  Where do I write it and in what format?  This is the best answer I received…

A birth plan looks like a single typed piece of paper that can be read at a glance by a lot of people.  You print it out, bring it to the hospital, and hand it to your midwife or doctor or nurse when you arrive.

Birth plans are normally photocopied on arrival and inserted into your file so it can be read at a glance by each of your caring practitioners.

Keep it Short, Simple & Easy to Read

A birth plan will preferably be written in clear simple sentences.  Our midwife suggested dot points under simple headings. Labor | After the Birth | Breastfeeding | Hospital Stay?  You can choose the headings.

What to Consider when Writing your ITP Birth Plan?

Below are a few things to consider when making your birth plan.  It includes all the research I considered when writing mine.

  • Antenatal Classes – Parent Education classes.  Birthing Classes.  Breastfeeding classes.  Research which you would like to attend and book it in as early as possible.  They are all different.  Depending on where you do your Parent Education classes, will influence the advice you are given for writing your birth plan.
  • A Birthing Companion – Who would you like to have with you during the birth? What roles would you like them to play?  Is your partner primarily there to care for you?  Is your birthing companion familiar with your bleeding disorder?  Do they know your medical history?  Will they be an effective advocate for you if you are unable to speak for yourself?  Who is looking after your partner?  Who do you NOT want to be with you during the labour?
  • When to arrive at hospital? Many healthy pregnant women stay home as long as possible in the early stages of labour, before arriving at the hospital.  This is not always the case with ITP.  Be sure to ask staff when you should present to hospital. You might need a platelet count straight away.
  • Inductions – Because of my personal bleeding risk, as well as the combination of medication I was taking, I was counselled towards having a planned induction at 38 weeks.  Having an induction will allow the medical staff to create a more controlled environment for me to labour within, ultimately giving me the best chance of a natural labour overall.
  • Pain Relief –  Pain relief was hard to make a plan for – especially with my first birth as I had no idea what was coming.  I had no idea if I would be able to handle it? I didn’t know what my mental state would be on the day of the birth, so I researched everything and decided to include on my birth plan, ‘Do not offer pain relief until requested’.
  • Epidural – If your platelet count is too low you may not be able to or wish to have an epidural.  This is due to the risk of bleeding around the epidural site, which can cause paralysis.  If a caesarian is performed and you do not have an epidural you’ll be totally knocked out instead or awake.  Frown.  My medication was altered in the lead up to birth to give me the best possible chance of a higher count and to be awake.
  • IV Line – Would you like an IV Line inserted during active pregnancy so blood can be given quickly?  I have read online that many people are against having an IV line inserted as it is seen as a means of hospital staff being lazy.  But what about your comfort?  I personally would prefer being pricked with a needle once over being pricked 10 times!  If you or your medical team are anticipating blood and fluids being regularly received, then why not prepare for it?

ONE FIT MOM blogged about her experience with gestational thrombocytopenia and how she changed her birth plan with her Midwife as information changed.

We reviewed our birth plans with the midwife, and she recommended that A) I have an IV saline lock inserted during active labour to allow for an emergency access point if my blood volume drops precipitously due to hemorrhaging; and B) I allow them to give me a shot of oxytocin immediately after the baby is born, in order to stimulate uterine contractions and expulsion of the placenta, and thus reduce the risk of a post-partum hemorrhage. We agreed to both recommendations, as they sounded like reasonable precautions. ‘

  • The Third Stage of Delivery – Did you know there was a third stage?  The third stage is the delivery of the placenta.  Did you know that there is a drug that can be injected into you to make the placenta come quicker?  Did you know that your body does not need this drug at all to deliver the placenta?  Ask your doctors about this well before birth.
  • Staying in Hospital – Monitoring the baby and you after the delivery.  Make a plan in case this happens, ask what your options are if you badly want to go home.  We were very unprepared for the length of time we had to stay in the hospital.  While we talked about having to stay for about a week, the reality of it was very hard to deal with.  We should have prepared for food, laundry and support well before it was an actuality.
  • Emergency Plans – Unexpected situations.  The definition of an emergency is a serious, unexpected, and often dangerous situation requiring immediate action.  As soon as you make a plan for an emergency then by definition, it is not an emergency anymore as it is not unexpected.  It is simply a different thing.  While many people might consider having an Emergency Plan another way of expecting the worst, I found it incredibly calming and empowering to know I had a plan in place.
  • Things to include not specifically about ITP – Your intentions for breastfeeding, any special needs you have with regard to diets, allergies, religious or cultural preferences, previous medical history, and any kind of disability that requires special assistance.

For me, making a Birth Plan with ITP was about letting go of ‘the Perfect Birth’ and understanding the many possibilities and outcomes of my birth.  Making a birth plan with ITP was about understanding that there is no ‘right’ – or better way to bring this baby into the world; just the safest option at the time for myself and my baby (considering and factoring chaos and confusion into the equation.)

Our son’s birth was such a crazy adventure that I laughed out loud when I read over our ‘birth plan’.  But regardless of the fact we did not use it or need it in the end, the process of preparing, researching and putting together the birth plan gave me confidence and knowledge which lead to an overall calmer, happier and more informed birthing experience.

Recommended Reading – I recommend reading ‘Calling for BIRTH PLAN IDEAS‘ from a woman who wrote a comprehensive birth plan with ITP.

More on writing your own birth plans check out Belly Belly’s article WHY WRITE A BIRTH PLAN and The Bump’s Birth Plan TEMPLATE to get you started.  Remember these are just starting points for you to begin creating your own unique Birth Plan that you feel comfortable with.