Top 5 most popular articles of 2016 from ITP and Me.
- THE QUESTIONS YOUR FRIENDS ARE TOO SCARED TO ASK
- THE SEVEN STAGES OF ITP
- LIFE EXPECTANCY
- YOUR STORIES
- PREGNANCY and ITP
- A BEGINNERS GUIDE to ITP
Feature image SEANMUNDY
I’ve done something really bad.
But it is done, so I may as well tell you what I did.
It all started two weeks ago when I dropped my son off at daycare. I left him in the capable arms of a kind woman.This kind woman cares for my son every Wednesday, and every Wednesday when I go to pick him up, I’m reassured he had the happiest, most wonderful day ever.
But two weeks ago, when I picked him up from daycare, my son was sick.
In what could only be described as a Poonami (Thank you Mander!) I spent the next week cleaning sheets, changing nappies, wiping up vomit and holding him close as he struggled with a tummy bug. He was sad, a little clingy and lost weight.
What I didn’t do, however, was take any of my medication.
A whole week. I just forgot.
I’ve been taking it every day for more than 8 years, and then suddenly I forgot. My body is addicted to it. My doctors are petrified about what would happen if I were to stop suddenly.
And then I did.
When I realized what I’d done I rushed to my medication and grabbed a glass of water, ready to take the tablet. Then something stopped me. What if I didn’t take it? What if I went just a little longer?
I had come this far, what was the harm in pushing it out a little longer?
I felt ok, I hadn’t had any terrible bruising. I wasn’t bleeding. I didn’t seem to be in adrenal failure. I was doing ok. I held the little tablet in my hand and wondered…
I knew my body needed a break from the medication, everyone agreed with that. But everyone was concerned about what would happen. It was too risky, my doctors told me. I also knew pregnancy and hormonal changes can have a huge effect on autoimmune disorders.
I decided I would wait another week. I needed a blood test and a plan. I went to the blood test centre (What are they called? Collection place?) to check my platelets.
In two weeks, without taking anything, my platelets have fallen from 52 to 41. Not bad really…
Tomorrow I have an appointment with my doctor to confess what I’ve done and have another platelet count. I’ll let you know how it goes.
Feature image from SARAWICKAM
ITP is the abbreviation of the blood disorder Immune Thrombocytopenia. Immune Thrombocytopenia is defined as a low platelet count in an otherwise healthy individual.
If a pregnant woman develops a low platelet count during her pregnancy she will either be diagnosed with ITP or Gestational Thrombocytopenia.
If she has not previously had a low platelet count, she is more commonly diagnosed with Gestational Thrombocytopenia. If the pregnant woman has a history of low platelets it is classified as ITP in Pregnancy.
If the platelet count corrects itself after the pregnancy then she simply had Gestational Thrombocytopenia. If the low platelet count persists, she may be diagnosed with Immune Thrombocytopenia.
Pregnancy is known to lower the platelet count of almost all pregnant women in some way. The normal range of platelets in nonpregnant women is 150 to 400 making the average platelet count 250. During pregnancy the average decreases to 213,000. Continue reading →
Feature image from ITPANDME
Green concealers are used to correct and hide redness and red tones in the skin. Green concealers work to neutralise redness, making them a great way to cover up pimples, zits, skin conditions, bruises and sunburn.
At first, I found green concealers terrible. I put way too much product on my skin, I did not know how to blend it, I hadn’t matched the colour well to my complexion and looked ridiculous. With practice, I have improved immensely. Now I am much better.
The problem with redness correcting green concealers is that there are SO many to choose from. Below is a guide to a few popular green concealers I’ve tried and how they worked. Hopefully, this guide will help you to achieve the most natural, bruise-free skin possible. Continue reading →
Feature image from ANCIENT CHINA
For many people with ITP, their spleen is to blame. The spleen plays an important function in the immune system, so when the spleen is misbehaving, it plays an important role in autoimmune disorders.
The human spleen is similar in structure to a lymph node and functions primarily as a filter of blood. It is also responsible for initiating immune reactions to blood-borne antigens. The spleen is on of the immune organs what tells the immune system to start fighting.
There are a number of reasons why people have ITP. It might be that the body does not produce enough platelets. For other’s their body kills off platelets as they are made. This is the spleen’s doing!
Splenectomies are still used as a treatment for ITP. A splenectomy
Get a better understanding of what it actually does, to help inform your decision to have it removed. I used to now really understand and thought – just take it out already. But I’m so glad my doctors didn’t listen to me – and I am so glad I have it. It’s more complicated than you think.
When the spleen is removed, the body’s immune system is compromised and is can develop a susceptibility to certain illnesses. When I was first diagnosed, I told my haematologist to just ‘Take it out!” It doesn’t work like that.
Firstly, a splenectomy will only successfully treat ITP if the spleen is to blame for the platelet destruction.
Secondly, even if the splenectomy is successful, there is always a chance that the spleen will grow back and the ITP will return. A study was done on 114 patients whose splenectomies failed and who required additional therapy.
A study was done on 114 patients whose splenectomies failed and who required additional therapy. The study showed that if the operation was likely to fail, it would be evident within the first year of the surgery (A couple of people’s splenectomy treatment did fail later).
PDSA – their page on splenectomy – https://www.pdsa.org/treatments/conventional/splenectomy.html
Splenectomy – pregnancy and not having a spleen – there is a little quote about the complications.
Guide to ITP people – http://guide2itp.com/truth-about-splenectomy
Just one more thing about ITP, it works for some people but not everyone. Everyone is different and ITP is unpredictable. I’m getting really sick of hearing this!
Long-term OUTCOMES IN ADULTS with chronic ITP after splenectomy failure
I’m so happy and proud to be celebrating HOW TO HEAL A BRUISE‘s 1st Birthday. It is one year of the book being out there in the world, and to celebrate I’ve been looking through reviews.
The book is AMAZING! It’s so easy to relate too. I read the titles of the chapters and was positive I hadn’t been through that phase, then after reading it in more detail, the realisation sank in that I had, I just hadn’t realised it.
It is honestly brilliant. Thank you for writing it! I think it will be a massive help to all ITP suffers and their family and friends.
Meghan’s book is filled with all kinds of important information on Immune Thrombocytopenia, even a detailed history of how it was discovered. I highly recommend this book for anyone who has ITP or knows someone with this blood disorder. It will change the way you look at the disease and empower you to take a more proactive approach with your health.
“How to Heal a bruise” is a must read for anyone diagnosed with ITP. It should be prescribed by the doctors and as early as possible to avoid feeling terribly alone, disillusioned and helpless