Yoga and ITP

yoga for itp, itp and yoga, ITP, low platelet count, low platelets, platelets low, ITP disease, immune system disease, living with itp, blood disorder, Chronic itp, platelets,

Feature image by DEARINSPIRATION

I have been going to yoga classes on and off for the past few years.  Sometimes I find myself falling into a wonderful habit of going a few times a week, other times I spend a few weeks doing it everyday from home and then there are those times when I look in my diary and realise it has been three months since I really sat down and stretched.  Those are the worst times.

Stretching, going to yoga, meditation and mindfulness are so important, especially for someone who is struggling with ITP on a daily basis.

I have tried to find a more scientific approach to describing the benefits of yoga but the truth is, you just have to do it to feel the benefits.  One day I will do a study on Yoga and it’s effects on ITP, but for now I just have to keep chatting about anecdotal evidence.

Fitting Yoga into the Routine

Yoga is great if you can fit it into your life style without turning it into a chore.  That is why I try as often as possible to keep my yoga practice at home.  That way I can stay in my pyjamas, or my yoga gear (or pull dirty clothes from the washing basket).  I don’t have to worry about having a shower or brushing my teeth or being late, or weather it is warm outside.

The best way to fit Yoga into your routine is to do it as often as possible.  This is a great way of making sure you notice the days that you don’t so yoga and might actually start to miss it.

Yoga at Home

Click here for Yoga DVDs

My favourite at home yoga is by Rodney Ye, who is pretty famous in the American yoga market, but not many Australians seem to have heard of him.  I love the AM/PM YOGA DVD’S as they are designed as short 20 minute yoga sessions, that over the week add together to work through your entire body.   They are addictive because you cant miss a day or you wont be even.  So you keep doing them.  The am session will wake you up and the pm sessions will easily wind you down.

However, there is only so much progress you can do on your own, before you need the help of some very qualified Yogi’s.  A yoga class, once a week, is a great way to move forward and stay on target, as you maintain a yoga practice at home as well.

Stretching for Sleep

The body will naturally fall asleep in a safe environment when it is completely relaxed.  Stress tension and worries are a large contributor to difficulty falling asleep.  Muscle soreness, tightness in your joints, tension in you hips and back and pains in your neck will also hinder your ability to get comfortable and fall asleep.  I have written other articles on Stretching before bed.  It is the number one factor for me, in having a good night sleep.  Read more about STRETCHING FOR SLEEP.

Recommended Yoga Schools in Sydney

YOGA SYNERGY –  Yoga Synergy runs on 9 week cycles that follow the elements of Earth, Air, Fire, Water and Ether.  Each term is a focused intensive where you follow and learn a series dedicated to that element.  Each week the series becomes more complex as you become more proficient at the asanas and more familiar with the flow.

PRESHANA YOGA  – Preshana Yoga is a highly disciplined yoga school, focusing on alinement and precision.  The progress made while practicing at Preshana will be slow and perfect, allowing you to master more advance yoga asanas with an ease you never expected.

BLACK LOTUS – The Black Lotus Yoga Studios incorporate props, blocks and straps into their practice, which can be a bit fiddly for those who are not used to assisted yoga.  There is not so much a focus on flow and breath, as there is an awareness of body positioning and pushing, focusing and challenging the asana.

MIND BODY LIFE Yoga Studio – The Mind Body Life Yoga studio’s have come highly recommended from my sister in law who was practicing there before, during and after the birth of her beautiful Baby girl.  Their Prenatal Classes come very well recommended.

The HOUSE OF YOGA – The House of Yoga, in Redfern is the first Sydney yoga studio to offer Anti gravity Yoga.  The images look totally fantastic and I am heading down there next week to check it all out.  I will keep you updated.

Recovering from Exercise with ITP

ITP and Exercise, exercise with low platelet count, ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp

Is there a risk for people with ITP when they exercise?  Yes.  However these risks associated with exercising must be weight against the benefits of such exercise.  What is a bruise every now and again in comparison to you or your child’s health?

Always common sense must prevail.’Vigorous exercise may lead to more “huffing & puffing” resulting in more petechiae than usual on the face and neck, but unless one has severe ITP with regular bleeding – nosebleeds or internal haemorrhage would not be expected with exercises that improve cardiovascular performance or muscle strength.’  ITP SUPPORT UK This article from ITP Support Uk goes on to say that this risk increases when patients are involved in contact or more active sports such as football, netball or basketball.

Recovery – How do you recover ?

The worst thing about a really great workout, is that for three days afterwards you can’t do another really great work out.  Post exercise, your muscles are aching and you can feel stiff and sore.  These side effects of exercise are compounded with ITP, as platelets are involved in the recovery process. Platelets are so importance in the recovery process that some sports specialist and orthopedists are offering platelet rich plasma injections as treatment for sport recover and to heal problems such as tendonitis.  ‘Within platelets are also powerful growth factors, substances which stimulate tissue repair of muscles, tendons, ligaments, and bones.  PRP is a blood preparation that contains few red blood cells, but a highly concentrated amount of platelets,‘ from Hunterdon Orthopedic. So how can you ensure that you give yourself the best chance possible of maintaining a healthy exercise routine?  Here are a few tips to keep you fit, and able to exercise as much as you like.

Continue reading

The Most Stylish Paleo Eater in the World

DIETRY - Paleo, Autoimmune protocol, eating for itp, ITP diet, Bruise, itp, low platelet count,living with itp.

So I know that this actually has got nothing to do with having ITP – but here at my house at the moment there has been a lot of talk about Paleo in our kitchen.  After stumbling across an old interview from 1952 where Marilyn Monroe spoke about her oddly Paleo eating habits.

“I’m sure that I couldn’t allow myself this indulgence were it not that my normal diet is composed almost totally of protein foods.”

Continue reading

Stretching before bed with ITP

ITP and sleep

Why Should You Stretch Before Bed?

 

Stretching before bed not only calms your body and mind before sleep, it releases tension in your muscles and draws them into relaxing.  Stretching has known to be benificia for thousands of years.  Did you know that the asansa of yoga where practices as a means to stretch out the body before meditation and pary.  Prepares the body and mind for relaxation, clear heads and focuses mind – relaxed and stress free.

One of the side effects for many medications is inability to sleep.

“Stretching in the evening is just as important as in the morning, which is when most people think about doing it,” says Laurel, Maryland acupuncturist Allison Vaccaro.

“Like acupuncture, stretching helps break up stagnation and encourages movement throughout the channels. Stretching in the evening helps loosen the muscles that haven’t been used during the day. Many people spend their evenings sitting on the couch watching TV. Some hit the gym first thing in the morning, then sit at a desk all day. These routines prime the body for stiffness, and can produce pain at night and upon waking.

“Patients of mine who follow my advice to stretch at night report better sleep quality, and less pain and stiffness in the morning.”

Seven Simple Stretches for Sleep

Start at your feet, toes even and work up the body so that you know you have stretched out your entire body.  the whole sequence should only take a couple of minutes.  Should not be about flexability or how far you can go.  Should be a focus on slowing down your body and preparing for sleeping.

1. Feet

stretch, ITP - low platelet count, low Platelets, ITP disease, immune system disease, itp blood, immune thrombocytopenia, itp, Prednisone,

2. Calves

ITP - low platelet count, low Platelets, ITP disease, immune system disease, itp blood, immune thrombocytopenia, itp, Prednisone, stretch

3. Thighs

ITP - low platelet count, low Platelets, ITP disease, immune system disease, itp blood, immune thrombocytopenia, strech, itp, Prednisone,

4. Legs

ITP - low platelet count, low Platelets, ITP disease, immune system disease, itp blood, immune thrombocytopenia, itp, Prednisone, stretch

5. Hips

ITP - low platelet count, low Platelets, ITP disease, immune system disease, itp blood, immune thrombocytopenia, itp, Prednisone, stretch

6. Back

ITP - low platelet count, low Platelets, ITP disease, immune system disease, itp blood, immune thrombocytopenia, itp, Prednisone, stretch

7. Neck

ITP - low platelet count, low Platelets, ITP disease, immune system disease, itp blood, immune thrombocytopenia, itp, Prednisone, stretch

 

 

My tips for moving house

itp, Blood disorder, treatments, help
itp, Blood disorder, treatments, help
the first wave

Before I was diagnosed with itp, in the weeks before I ended up in hospital, I organised to move house.  Moving house is enormous, lets be honest.  It is right up there with getting a divorce and having a loved one pass away, or so they say.  Over a couple of weeks, as I packed, lifted, unpacked, cleaned and rearranged my new place, I started to crash.  My arms where wrecked and covered in bruises, my body was tired and out of sorts, I was frustrated and emotional and not in a good way.  I lost all my energy and in every way fell apart.

Since that move, I have shifted house a few times and learnt a few basic tricks to keep on top of it all.  So what can you do to make sure that moving house does not completely destroy you, sending you backwards when you have been moving forwards for weeks?  How to not end up in hospital. Here is my list of tips.

1 Do not try and do it yourself.  Hire professionals to do all the lifting and moving for you.  They are not only fast but clean and efficient.

2 Have realistic expectations.  What can you really achieve in the amount of time you have?  Be really honest with yourself about this.  I tend to work out how much time I think I will need to move house, then add on like an whole other week.  Problems will always come up.  Plans will change and then suddenly it will be raining.

3 Don’t pack the crap.  Not everything from your old house needs to be packed and moved across.  Use this time as an opportunity to clean and sort and throw away a lot of stuff.  It is best then to start packing a week earlier than you think you need because deciding what to pack and what to chuck takes concentration and sometimes a lot of will power.  So don’t rush it.

4 Pack fast – Unpack slow.  Excitement and anticipation tends to lead people to unpack quite quickly once they are inside the new place.  This is a real kill joy tip, but try to unpack as slowly as you possibly can.  Do it once and get it right the first time, then you wont be moving things and furniture around a few times once you are in.  This constant shifting and unsettling and carry boxes between rooms can take more out of you than you think.

5 Be crazy about the labeling.  Need I say more?

6 Make a plan for you meals.  Packing up the kitchen, can often mean a bit of laziness creeps in, with regards to meals and home cooking.  Don’t use the packed up kitchen as an excuse to just eat out.  Pack the Kitchen last, unpack it first and make a list of every meal that might be eaten in the meantime.  Planning and being prepared for this time will help you stay organised and healthy.

7 Time for exercise.  Moving house is not exercise.  Even though your feel tired, your arms might ache and your falling to sleep where you stand, you still need to maintain your exercise routine.  Being stressed is not a cardio workout.  Exercising will put you in a better mood and keep you feeling sane and normal.

Good luck. X