8 Weeks Without Medication; what happened?

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It’s been 8 weeks!

If you haven’t heard what I’ve been up to, catch up with the beginning of the story here ‘I’VE DONE SOMETHING BAD‘ first.

I have been taking prednisone every day* for the last 8 years. And for the last 8 weeks, I haven’t had any… Boom. Cold turkey.

Boom! Cold turkey! I just stopped!

I didn’t mean to stop, but once I realised I hadn’t had anything for a week, I decided to take it a little further. I felt excited. I felt excited to be able to try something new with my body, to see what happened. I was seduced by the hope of everything being ok. I felt like something exciting is about to happen.

I had a few bruises on my legs but I didn’t really think about them. I was a little scared but mostly I believed that this would secretly be the end. I believed that I would just suddenly stop taking my medication and nothing bad would happen and everyone would tell me I was a medical miracle and I would be interviewed for the next edition of SPONTANEOUS REMISSION.

Here is what really happened.

My platelets slowly fell. In the first few weeks, I was certain that I was going to be fine. My platelets slipped but only by a couple. I thought I might have magically cured myself. I had heard that pregnancy can reek havoc on your hormones and I thought ‘wow, maybe being pregnant actually rebooted my immune system, amazing.’

In the first few weeks, I was certain that I was going to be fine. My platelets slipped but only by a couple. I thought I might have magically cured myself. I had heard that pregnancy can reek havoc on your hormones and I thought ‘wow, maybe being pregnant actually rebooted my immune system, amazing.’

Then they crashed hard.

My platelets fell quickly, down below 20. My ankles started to ache, my hands were stiff and sore, my neck felt sore all the time, and I was bruising everywhere. I feel sad and lacked energy. I ate too much food because all I wanted to do was lay around and feel sorry for myself.

I was struggling to manage the physical symptoms of an ITP inflammation as well as the emotional disappointment of having failed to magically cure myself.

I became rundown. I was sad all the time. I was tired and moody and kept hurting myself. I was stressed and anxious as my adrenal glands were flipping out and withdrawing from the drug. I was a mess.

I am so sad to say that it did not work. I wanted it so badly, but it all ended in nothing.

I’m back on Prednisone. After a high dose initially and rest to get over bronchitis, I am back to taking a moderate amount.

I feel like I failed.

*barring the occasional hangover vomit and forgetful weekend.

 

A Transverse Baby

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I know this is a little off the topic of ITP and Bleeding Disorders, but it was something I wanted to write about.  There isn’t much personal information onIine about transverse babies, and a few people keep asking me what it feels like to have a transverse baby, so I will do my best to describe it.

I’m currently at 36 weeks and our baby has been transverse for at least two months.

As this is my first experience with the third trimester, I have nothing to compare to, so for most of the day, everything just feels normal to me.  But I will try and break it down so it makes a little sense for people who are unfamiliar with the feeling of a transverse baby. Continue reading

How to Heal a Bruise Reviews

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So many thank yous to everyone who has read, enjoyed and reviewed How to Heal A Bruise.  I am so excited to be working on a second book to compliment the information and stories shared in How to Heal A Bruise.  When I doubt what I am doing, I go back to this article and am reminded about why I do what I do.

“How to Heal a bruise” is a must read for anyone diagnosed with ITP. It should be prescribed by the doctors and as early as possible to avoid feeling terribly alone, disillusioned and helpless until you have the knowledge you can’t move forward. Thank you, Meghan you are such an inspiration”

By Amazon Customer on January 23, 2016

 “Meghan’s book is the #1 guide to life with ITP. I sincerely wish I had this book when I was diagnosed, it would have assisted me and my family in understanding more about this rare disease.”  

C on October 4, 2015

“The book includes lots of ITP information such as the science, history, tips and guides, alongside strong emotional support. It is now my own ITP Bible! I could not recommend it more highly!”

The full REVIEW from Katie Meloy can be found here.  

“Beyond being a book documenting scientific and medical information, is the personal experience of Megan Brewster after seven years of living with this blood disorder and is enriched in fourteen chapters…I didn’t know what to expect on How To Heal A Bruise, then simply I couldn’t stop reading.”

The complete REVIEW Laura can be read here.

 “Good read, informative but personal.”

An Amazon review from DANNY

Have you read How to Heal a Bruise?

What did you think?  Have your say below in the comments section below.  Or better yet, head over to Amazon and share your thought there!

The Third Trimester of an ITP Pregnancy

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Read about the 1st TRIMESTER and 2nd TRIMESTER here.

Yes, if you haven’t heard, we are having an ITP baby and are already in the third trimester.  Yay!  Our focus is finally turning towards labor and birth which is very exciting.

Doctors – ITP Pregnancy, gestational thrombocytopenia, immune thrombocytopenia during pregnancy, breastfeeding with ITP, birth with ITP, ITP birth plan, low platelet pregnancyI am seeing doctors at the hospital every two weeks (Every other week at my GP) at the moment with ultrasounds every third to check baby growth and wellbeing.

The baby doctors are very different to what I expected.  There seems to be a myth going around the obstetricians are evil old men who treat women like dairy cattle, but I have yet to see that.  Our baby doctors are both hilarious women and young positive men.

We have not come across any evil maniac OB’s who want to induce us at the drop of a hat and have scheduled c-sections so they can spend all weekend playing golf.  No one has rolled their eyes at us when we mention delayed cord cutting, minimal monitoring, calm birthing and setting the mood. Continue reading

Change, It’s Benefits & How to do it

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Change has been on my mind.  It’s that time of year.  January is the month of NEW YEARS RESOLUTIONS and making plans for the future.  I can’t help thinking about how much I changed last year and wondering at the changes that will come in 2016.

I was once someone very different, then I changed.  I was once someone without an autoimmune disorder and then something changed and I became someone with ITP.  Which makes me think I am capable of changing back.

We all change all the time.  It is natural.  It is what keeps life exciting.  We grow, age, learn, develop, interact and are changed by the world and people around us.  So with all this change going on, how can we be sure we are making the right changes.  If we don’t stop and take notice, we might end up changed for the worse.

We are going to change whether we like it or not – So why not make sure we like it?  And why not be happy about the Benefits of that change? Continue reading