Welcome to ITP & Me

ITP & Me was created in 2011 as a website to support and inform patients of ITP and their families.

This website hopes to offer more than just medical support to patients with ITP but also emotional, lifestyle and daily ITP guidance.  There is so much still to learn about Immune Thrombocytopenia, and so much information out there to share.  There is so much about having this disorder, that doctors simply would not understand.

ITP occurs in approximately 1 in every 16,000 adults per year and many of these cases occur in females between 20 – 40 years of age.  No one knows exactly know what causes ITP. It commonly coincides with a viral infection, stressful incident or sickness, when the immune system become over active, it is not always the cause.

ITP & Me is an independent organisation and is not funded or supported by Pharmaceutical companies


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5 thoughts on “About

  1. truth@truth.com'
    Cassandra says:

    Where do I begin? (This gets a bit heated – but preying on the sick is wrong and a few choice words can not compare to what harm your site may cause).

    Unlike some other organs, like the liver, the spleen does not grow back (regenerate) after it is removed. Up to 30% of people have a second spleen (called an accessory spleen). These are usually very small, but may grow and function when the main spleen is removed. (took less than a second to google).

    Have you no shame?

    –Chia seeds LOWER platelets -shame on you for publishing this DANGEROUS encouragement!! Might as well recommend quinine and FISH OIL and wine! (oh wait – you did two of three, didn’t you!)

    — RED GRAPES LOWER PLATELETS — NOW I KNOW WHOEVER YOU ARE, you don’t have ITP or medical care. Alcohol of any kind lowers platelets as a rule (ever notice how bruised up heavy drinkers without ITP become?)and QUININE is outright scary so NO TONIC! (oh, wait, you like vodka – how’s that working for ya?)

    — Peanuts are legumes (so you DO eat legumes, whoever “you” are, not that there is anything wrong with eating legumes, entire cultures eat legumes and do NOT eat milk and are NOT calcium deficient as your page suggests – once again, huh?).

    Paleo encourages nuts/discourages legumes and FYI: Paleo is NOT a cure for ITP – Shame on you for suggesting it! And just a general sloppy work shout out to “you” for not even bothering to read what is and is not defined as Paleo.

    — It is a shame you fail to read the science on this – GMO in its current form is not necessarily a health issue – it is indeed an economic issue (those who OWN the GMO patent, may one day own our food supply should natural crops be overrun by wayward, wind blown GMO plants and then repossessed by corporations who own the patent – it has indeed happened to a few farmers – but don’t trust my anonymous post to this sham site – read up from a respectable site! (Not yours, and certainly not one of the peddlers who hawk their snake oil here).

    — “accept milk???” “except milk??? Huh??? What happened to proof reading? Could you not devote a moment prior to selling us something we don’t need? Yes, I know that selling magical thinking, anecdotal, evidence free stories and a plastic bottle of pills which falsely claim to benefit ITP “FEELS RIGHT” to “you” – but it is indeed wrong. I wish you did have insight to offer, rather than a false sense of entitlement to blabber.

    Wherever there is an idiopathic disease, there will be sociopathic profiteers ready to jump in and offer “treatment”.

    • Meg says:

      Thank you so much for taking the time to comment on this website. I’m not sure why you are so terribly angry, but I am sorry for that. Living your life as you do, with so much hostility and aggression towards strangers must be exhausting. I wish you all the best in finding a place to properly direct all of that stress. Until then let me kindly inform you that you are no longer welcome here on this website. While you seem to have issues with ITP patients sharing their “anecdotal” stories, we do not. So bugger off. Kind regards, Meghan.

      • luvsumor@hotmail.com'
        JH says:

        Dear Meg,
        You are a legend. your attitude, about life in general, are brilliant. but your response (above) is even better.
        I’m so glad that everyone who has ITP, or knows a friend or family member with this horrible thing, has this
        awesome community to share their stories and find support.
        JH. xxx

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