Fear

ITP Symptoms treatmentThere is a part of being chronically ill that a lot of people don’t want to talk about it.  Fear.  The fear that now exists in the mind of a ‘sick’ person.  With ITP there were so many aspects of my life that I used to take for granted that became fraught with danger and worry.  I remember when I was first diagnosed with ITP I became afraid of everything.  And this fear often went unspoken.

Standing at the top of a tall flight of stairs covered in people was a frightening idea.  I became scared of riding my bicycle on the road, wondering if I could make it to the hospital if I was hit by a car.  I became scared of heights and cars and crossing a busy street.  I felt afraid of knives, blades and hitting my head on cupboard doors.  I was scared of hurting myself and bleeding in front of others, having them stare or worse still fuss over me.  A lot of these fears moved to the back of my mind, replaced by other worries like being late, or loosing my wallet, but there is one fear that is still with me.

I am still afraid of being alone. I don’t mean alone for the night at home, or walking to work down a quiet street, but I mean really alone.  I am scared to live in a house on my own and I am still scared if there is no one around me who knows that I am sick.

I have not found anyway of making that fear go away. Sometimes I think that there is no cure for fear, you just learn to be ok with its presence.  But you can reduce the worry.  Take such amazing care of yourself, that you become your own career.  And then there is always someone around looking out for you.  Always someone to take care of you.  You.

If you know someone that does suffer a chronic illness perhaps you could ask them about there fears, get them talking about what they have become afraid of.  It can reduce the power, if fears are released from the mind.

The Moon Face.

One of the worst side effects from taking Prednisone is the fact that slowly over time, your face will become round and puffy and slightly dumb looking.  Lymphatic Drainage ITP, Lymph SystemI unfortunately have this exact face.  Starting with the round face I got from my mother, it has gotten considerably worse in the last year.

I had heard the words ‘lymphatic drainage’ before in different circles, but always thought of it more as an indulgence than a beauty remedy.  Because of the changes in my salt retention, I knew that more fluid was being stored on my body.  I saw Lymphatic drainage as a means to shift come of this fluid from my face.

So how many of you really knew that your Spleen is part of your lymph system?

How many people have been told that there spleen is playing a huge part in their ITP?

Could Lymphatic Drainage be more than just a short term beauty therapy?

I am just beginning my cycle of Lymphatic Drainage, and am keen to hear of anyone that has been using it in relation to their ITP.  I am concerned about the cost of each treatment and am going to look into if you can do this on yourself.  Any ideas anyone?ITP lymphatic Drainage

Fungus Horror

So it took 1.25 litres of coles brand soda water, icey cold with a squeeze of lemon and half a block of Chocolate Lindt caramel chocolate to get these horrific herbs down my delicate little throat.  Im very sure that is not the way Emperor Qin Shi Huang took his herbs.

Travel Insurance

ITP Travel Insurance, Traveling, ITP help.Planning a trip to Bali and I am discovering that none of my medical or emergency medical expenses will be covered because I am taking an immune suppressing steroid.

While I am covered for medical expenses that I might incur from things such as accidents and car crashes and trees falling on my head, I am not covered for any medical expense directed attributed to having ITP.  I think that I am actually in a pretty good position,  because ITP can be managed to a certain degree.   The emergencies are made worse by having ITP

The best advice I can give you is to read everything the company has on their website to read, then call them and talk to a person.  Offer a few examples of potential problems and see what they say.

I was surprised and pleased to find out that the medication I will be taking on the trip is completely covered because it falls under the category of luggage, personal items and possessions.  So if I loose my script, my travel insurance will cover the cost to replace it in whichever country I am in.  Wonderful.

Has anyone had any other luck with Travel Insurance from Australia?

 

Going Gluten Free

There are a lot of reasons why you may want to go gluten free.  Perhaps you have a gluten intolerance or have been diagnosed with the Autoimmune disorder – Coeliac disease.  You may see going gluten free as a means to loose weight or to gain control over you stomach and digestion.  Whatever your personal reason for making the change I can defiantly recommend it.

Going Gluten Free, ITPHowever sad you may feel about walking past a Burke Street Bakery, or going out for breakfast with you friends on a Sunday morning – the benefits out weight the loses.  While I have been easily converted to being gluten free as part of the Paelo Diet, I have to admit that at my weaker moments -seen here – I have felt a little inclined to eat a tasty sweet.  Only when I am hungry or tried do I crave these indulgences or even think about bread, carbs, pastry and cakes.

My advice, to staying Gluten free, long after you have made the decision, is to be prepared.  Take alternative snacks if you are heading out.  Eat before you get tired.  Don’t ever let yourself become starving ( We make bad decisions on an empty stomach ) and always get enough rest.

Australia Day

ITP DiagnosisToday is my four year anniversary of living with ITP.  Im sure I was living it for a lot longer than four years, but today was the day I was told.  Australia Day.  I was diagnosed and discharged in time to listen to Muses’ song Knights of Cydonia, win the Triple J Hottest One Hundred.  I wish that I did not count the years so rhythmically, and I wish that they weren’t flying by so quickly.

 

Day 9 – Pimple Panic

For more than a week I have not consumed any artificial colours, food additive, chemicals or toxins.  I have eliminated all processed food from my diet (which is what the Paelo Diet is famous for).  I no long eat tomato sauce or pack noodles, canned fruit or potato chips.  Flavoured Tuna and muesli bars have also been given the flick, and it is now, 9 days later that the pimples are starting to appear.

I can that my skin is going to get worse before it gets better, but finally, after removing all those numbers and chemicals and anti caking agents and salts and sugars, my body can start to heal.  I can see it in the explosion of acne that has erupted over my face.  I don’t know how long it will last, but I am certain I am making process.  I am positive that this is my skin expelling thirty years of shit.  These pimples are my skin sorting itself out.

Paelo diet, pimples, skin.  drinking waterIf you are going to try the Paelo diet, you need to anticipate that your skin will more than likely go through this detoxifying process.  Anticipate it, celebrate it, it means that you are certainly on the right track.  Drink plenty of water and wait for it to pass.  It will.

Week 1 – Aced it

Week One The first week has flown by yet so much has happened. I have been kind toItp and diet myself as I figure this diet out, so I must say now that it was not the most strict of Paelo diets. The most important thing that I have noticed is how forgiving the diet can be if you make a wrong step.

Paelo first week

 

 

 

The First Week is Easy I have not tried many diets in my life, probably none as structured as this, but I am wonderfully surprised at how forgiving the diet is of mistakes. I have heard people talk of failing a diet, or not being able to stick to a diet that was too strict. I have heard of people giving up diets that they simply could not continue, but this is not an issue when you are eating Paelo When I have eaten foods that are not technically allowed, I have been able to shrug my shoulders, say oh well and attempt to do it a bit better next time. There is no failure; it is just a new habit that needs to be learnt. So don’t give up.

Changes in your body Yes you will loose weight. Not a lot, and your friends wont notice, probably not even your partner. But you will feel it. You will feel a shift deep under your flesh that will tell you it was a good idea to start eating Paelo. It will remind you to stay on track. You may not even see results, in measurements or weight for ages. But you will feel different right from the start. I lost 4 cm off my waist and 2 from my hips.

ITP symptomsITP results? There has been no change in the results and blood count from my illness but I would certainly not say the whole week has been fruitless. Also it is far too early to tell. It may be years before my body heals itself. It has been sick for years after all. I look, feel and sound better. I have more energy and my skin is clearing up. I am eating healthier and feeling stronger. Now who would say that is not a good medicine?

Week One – Paelo Diet

So it has been a week.  I am surprised at how easy this was.  I haven’t told my friends about it yet because I like to know what I am doing before I try and explain it.  I have already lost 4 cm off my waist in the first week and 2 from my hips.  Everything takes time, but it is always nice to know you are heading along the right track.  I can’t wait for my next Doctors appointment to get my blood count! Itp Paelo Diet