The Beginners Guide to ITP; What to Do After You Are Diagnosed

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Feature image by CLAUDIABRUNO

ITP or immune thrombocytopenia is classified as an autoimmune disorder.  This is because it is the immune system that targets and destroys your platelets in your blood.  ITP is diagnosed by a low platelet count after the exclusion of all other causes for this deficiency.

So you have just been diagnosed with ITP.  Firstly, welcome and don’t worry.  Having ITP is not going to ruin your life.  This article is going to walk you through the first steps you should take after your diagnosis.

It will be easy and you can learn from our mistakes.

1. Start Tracking Your Platelet Count Now

Keeping a close eye on the rise and fall of your platelet count is key to removing a lot of the FEAR and worry from ITP.  Over a long period of time, patterns will begin to emerge and you will start to connect platelet drops with other environmental factors. Continue reading

The low down from the ITP Support Association Convention!

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low Platelets, platelets low, platelet count, what is itp, low platelet counts, itp blood, itp platelets, itp blood disease, itp autoimmune disease, itp blogs, blogs about itp,A guest post from KATIE MELOY 

from MEMYSELFANDITP

Today I attended the 20th Anniversary and convention of the ‘ITP Support Association’. I was very eager to attend after very recently being diagnosed with the condition. I’m pleased to say that I was not disappointed and would urge anyone looking for support, help or information to attend.

The convention catered information in all aspects of ITP: from pregnancy, childhood and adult ITP and also different severity’s (acute, persistent and chronic ITP). It was a very laid back open atmosphere where every question, opinion and experience was valued. Continue reading

How to Heal A Bruise, A Brand New Book

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Exciting news people

There is a brand new ITP book on the way from Meg Brewster and ITP & Me!

book coverMeg is in the drafting stages of a brand new non fiction ebook, HOW TO HEAL A BRUISE, which will be released in conjunction with ITP & Me.

How to Heal a Bruise is a collection of most popular ITP articles, as well as details from Meg’s personal journey and interviews with other patients.  How to Heal a Bruise will also include some of the latest ITP research and advice for living a life with ITP.

How to Heal a Bruise, will be out (fingers crossed!) in October 2015.

If you have any comments, ideas or questions you would like answered about ITP, now is the time to mention them in the comments below!

Mizzie

People with itp, famous people with itp, living with itp, celebrities with itp.

Feature image from MAMAMIA

Welcome to Mizzie's Story

We like to ask all sorts of questions here, from the diagnosis story, to how patients with ITP sleep.  How they deal with stress and how they feel when their platelets are falling, appetite, mood and how their life has changed since ITP – Funniest or worst injury and how they manage ‘being sick’…  Every ITP story is different.  Enjoy.

A little bit about me…

I’m an Australian citizen and currently employed in the defence force, I exercise on a daily basis and I spend my free time raising two beautiful kids with my beautiful wife.

How were you diagnosed…

It was August 8th 2014.  My career was thriving.  Everything I ever wanted was coming my way. I decided to take my family out to dinner 2 days prior to going out on a field exercise with the Army that lasted 5 days. We went to Sizzler’s and everything seemed normal apart from gastro going through the family.

I had a vegetarian dinner were I had some off tasting mushrooms and didn’t think much of it. I woke up the next day feeling as if I was hungover but carried on with normal business. Over the coming days, I started becoming constipated and having bad tummy pains. This stage was just a constant 3/10 pain. ( I compare to be hit by a car as I was when i was younger). Day 3 of the field exercise I became really constipated so I had milk to help with my bowels, within 10 minutes I was in the toilet, I had projectile diarrhea and 10/10 pains in my gut as if someone ripped a hole in my belly. I had this episode and later that night I went to bed and was in constant pain. Continue reading

Three Years of ITP and Me

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Feature image from SARAHCOUCH

When I started this blog three years ago, I had no idea what was going to happen.  I thought at best it would be a hilarious side project while living in Indonesia, at worst I would have a few months of learning a little about putting a blog together.

This was in 2012, four years after I was diagnosed with ITP.

At the time, while living in a bright blue house (just like Frida Kahlo) down the road from Schapelle Corby’s cell in Kerobokan Prison, I had no idea what I was doing.  I expected this blog to have very few readers and that I would be bored of it in a few months, hopefully having learnt a little along the way.

I knew very little about websites and at the time my biggest goal was to install a widget and change the colour of the link text.  ITP and Me started as a beige single page blog roll with a fixed impractical menu bar.

I did not expect that ITP and Me would end up holding my attention for so many years, have thousands of people following from around the world, and inspire others to share their ITP stories.

What I have Learnt in these Three Years

There is no ‘typical ITP story’.

Meeting other people with ITP is not always that helpful.

Often I feel even more confused and isolated when I hear of other people’s experience with ITP.  Even though we all have the same disorder, we are all going through something very unique and personal to each of us.  I have learnt that, while it is called ITP, we do not all have the same autoimmune disorder.  Chronic patients have different experiences to acute patients and children are different again to adults. Continue reading

Reminder to go to the Dentist! (Random I know)

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Feature image from MISSQUITECONTRARY

On going to the dentist.

I have just been to the dentist for the first time in ten years.  I know.  That is too long.  I thought if I just made sure I BRUSHED MY TEETH correctly, I would be ok.  My dentist made her disappointment incredibly clear.

If you don’t already know, going to the dentist with ITP can be one of the worst things.  Mouths and gums are very sensitive and quite fragile.  They bleed easily. Continue reading

Is Your ITP Forever?

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Feature image from DANIELLEKLOCKE

I recently found this image online while I was looking for pictures of activated platelets.  I could not stop thinking about it.  I still can’t…

Tattoos are forever.

I keep wondering about the permanence of this tattoo, and how it has come to so literally define this ITP patient.  Obviously it would need to be in a easy to read part of the body where anyone could find it quickly.  On the arm, this person would see it every day.  People probably ask about I.T.P everyday because of that tattoo. Continue reading