Paleo Baking at My House!

From Three cook books.

The Autoimmune protocol from Mickey Trescott – don’t publish the recipes jus tthe images, and put the pictures on Facebook and Instagram.

And then the other one – which would be the science one – Make them look really good – Put them on instagram.  they don’t have great images in the books but I will make them nice.

Borrow I Quit Sugar – And make a couple from there too.  Affiliate links to that too -

Paleo, Autoimmune protocol, eating for itp, ITP diet, itp eating paleo, low platelet count diet, living with itp, chemical free itp foodBlue Berry Crumble Top Muffins – From Sarah Wilson’s blog – freaken so fucken yummy – oh my goodness.  Yum.   muffins – Image here from my baking time.  recommending the book to buy.  Such a good snack for afternoon tea.  I Quit Sugar; 8 Week Detox Program and Cookbook has great recipes.

- part of a nice breakfast.

A link to the recipes here.

 

Paleo, Autoimmune protocol, eating for itp, ITP diet, itp eating paleo, low platelet count diet, living with itp, chemical free itp foodThe Chicken Patties – from the Mickey Trescott Cookbook – Changing our entire kitchen and how I am looking at making things out of as few ingredients as possible.

Are Vaccines Causing ITP?

Vaccines and ITP

They say that there is no know cause for ITP.  All the information points to a combination of genetic susceptibility, life style, stress, immune function and whatever…  The list goes on.  If you have ITP then you are probably sick of hearing all the reasons why some people get ITP and other people don’t.

While researching an article for ITP and Me, I came across a very interesting pie graph that I wanted to share with my readers.  I was looking for information on People Living with ITP for another article, and I had found heaps.  I pulled it from a publicly posted presentation from a medical conference in 2012.  It was a pie graph that depicted the prevalence of Secondary ITP in relation to Primary ITP.

Secondary ITP, Primary ITP, ITP facts, People with ITP

 

  • Primary ITP accounts for 80% of all cases of ITP.
  • SLE or Systemic Lupus erythematosus or Simply Lupus accounts for 5% of cases. 
  • APS or Antiphospholipid Syndrome or Hughes Syndrome or Sticky Blood accounts for 2% (ME!)
  • CVID or Common Variable Immunodeficiency accounts for 1 %
  • CLL or Chronic lymphocytic leukaemia accounts for 2 %
  • Evan’s or Evan’s Syndrome accounts for 2 %
  • ALPS of Autoimmune Lymphoproliferative Syndrome is responsible for 1 %
  • HIV or Human Immunodeficiency Virus accounts for 1 %
  • Hep C of Hepatitis C has about 2 % of ITP cases
  • H. Pylori or Helicobacter pylori is 1 %
  • Misc Systemic Infection which would be Miscellaneous Infections account for 2 % of ITP Cases

Then I found this …

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How Often Should I Ask My Friend how She’s Doing?

Blood disease itp, itp platelet disease, itp autoimmune disease

My dearest friend has ITP.

I have written about ITP and Friendship before here.

Her platelets fluctuate as do her doses of medication, access to good and bad information, her levels of being tired and in turn her mood. Each day that she wakes up she has ITP, and it isn’t going away any time soon.

Meanwhile I go about my business, working, moving houses, seeing friends, working on different projects, all with my (for now) reasonably healthy body to take for granted. I wonder about my friend often. I wonder if she has been to the doctor lately.  I wonder what her blood count is, I wonder how much prednisone she is on, I wonder how much she wonders about it all. I see her posts pop up on her blog about living with ITP and it reminds me, sometimes shocks me, that she is still living with ITP. I say shocking because often when shit things happen in your life you buckle up, breathe in, and try your best to move through them and come out the other side. We have all done this – buckled up, heard the bad news, cried and let the event finally pass by. But this one isn’t going to go away.

Each day she continues to wake up with ITP.

So my wondering has led me to ponder a couple of questions.

How often should you ask your ITP suffering friend how they are doing, not wanting them to not feel alone and forgotten in it?

How much do you allow them to remember and how much do you help them forget?

Living with ITP, What is ITP, family and friends, ITP friends

Meditation & Relaxation. How I Got it So Wrong

Treatment for itp, treatment of itp, treatment itp, itp treatments, Side Effects Prednisone

On Saturday I did nothing.  Not nothing as in, I did the washing and cleaned the house and called old friends and made casseroles for my neighbours kind of nothing, I mean actually nothing.  On Saturday I woke up at 9 am and did not get out of bed until 11am.  From here I headed straight to the beach.  No shower, no breakfast just pulled on some clothes and left.  By 12 I was drinking coffee, lying in the sun reading Gone Girl and walking with my feet in the water.  At 3pm I was hot and a little pink from the sun so I headed home to sleep off the day on the couch watching movies.  

Sounds like the prefect day?  It wasn’t.

I actually felt terrible the whole time.  I felt like I had wasted my day.  I had thought that I needed some time to relax and move slowly, instead I was just panicked more because relaxing felt selfish.  Apparently doing nothing makes me feel really guilty.

I hear time and time again that ITP and autoimmune disorders are stress related.  I have read that autoimmune disorders and diseases are linked to inflammation, stress and lifestyle.  I keep being told that Meditation and Relaxation is such a great treatment for ITP.  The PDSA website claims that meditation and relaxation are the most popular alternative treatment for people with ITP.  But I can’t do it!!  I just can’t seem to do it at all!

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Recovering from Exercise with ITP

ITP and Exercise, exercise with low platelet count, ITP, low platelet count, low Platelets, ITP disease, immune system disease, living with itp

Is there a risk for people with ITP when they exercise?  Yes.  However these risks associated with exercising must be weight against the benefits of such exercise.  What is a bruise every now and again in comparison to you or your child’s health?

Always common sense must prevail.’Vigorous exercise may lead to more “huffing & puffing” resulting in more petechiae than usual on the face and neck, but unless one has severe ITP with regular bleeding – nosebleeds or internal haemorrhage would not be expected with exercises that improve cardiovascular performance or muscle strength.’  ITP SUPPORT UK This article from ITP Support Uk goes on to say that this risk increases when patients are involved in contact or more active sports such as football, netball or basketball.

Recovery – How do you recover ?

The worst thing about a really great workout, is that for three days afterwards you can’t do another really great work out.  Post exercise, your muscles are aching and you can feel stiff and sore.  These side effects of exercise are compounded with ITP, as platelets are involved in the recovery process. Platelets are so importance in the recovery process that some sports specialist and orthopedists are offering platelet rich plasma injections as treatment for sport recover and to heal problems such as tendonitis.  ‘Within platelets are also powerful growth factors, substances which stimulate tissue repair of muscles, tendons, ligaments, and bones.  PRP is a blood preparation that contains few red blood cells, but a highly concentrated amount of platelets,‘ from Hunterdon Orthopedic. So how can you ensure that you give yourself the best chance possible of maintaining a healthy exercise routine?  Here are a few tips to keep you fit, and able to exercise as much as you like.

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ITP and Miscarriage

Itp and pregnancy, pregnancy complications, pregnancy information, pregnancy facts, itp pregnancy complications

Miscarriage and the loss of a children during pregnancy is probably the worst, most personal, private kind of horror a woman can go through.  It is the kind of grieving where no one wants to touch you, where you look like a collapsed version of yourself and suddenly you can’t understand anything around you.  At least that’s what it felt like to me.  

As more than twice as many women than men have ITP, it makes sense to be talking about how ITP can, and does effect the ladies.  Yet there is not much information out there for women looking for help with ITP and Miscarriage.  There is not even much information for woman with ANY bleeding disorders and miscarriage!

In any natural miscarriage with a healthy mother, there is always a bleeding threat.  Yet for women with haemophilia, ITP and other bleeding disorders there is is an even greater threat.

So what are the treatments for miscarriage? I guess treatment is the wrong word.  Perhaps I should write care or care plans.  There are currently three ‘care plans’ available to a woman for a miscarriage, and none of them will save the baby.

1. The Do Nothing Method, where the woman waits for her body to naturally expel the tissue at home.  This method is claimed by many to be the most natural for the human body as it involves the least amount of intervention (None).  How it effects the mind is a whole other matter.  The Do Nothing Method can take anywhere from an hour to 4 or even 5 weeks.  If during this time the woman becomes ill or feverish, then further intervention is taken.  Also if after 5 weeks, she may be ready to talk about other ‘care’ options.  Which leads us to

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